Atypical Polypoid Adenomyoma-hysterectomy or not?

madella · Silver Member Joined: 29 Jan 2000 Posts: 309

I’ve been diagnosed with atypical polypoid adenomyom. I was recommended for a total hysterectomy including removal of the ovaries. Has anyone out there been diagnosed with atypical polypoid adenomyom? I would value the input of anyone else with experience with this.

joette · Newbie Joined: 07 Mar 2005 Posts: 21

Hello, I am 45 years old with same diagnose, fragments of endometrial tissue with features of atypical polypoid adenomyoma. I’ve seen two doctor and they both to suggest a hysterectomy they said that only treatment is total removal. .

Guest · Guest

I was recently diagnosed within 2 weeks - i was advised hysterectomy, leaving ovaries was an option..... what have you ladies done since your diagnosis?

chocjen66 · Newbie Joined: 13 Jan 2008 Posts: 2

when i was diagnosed the doctor recommended a hysterectomy, but now the doctor says there's only a small chance of getting cancer so there's no need for a hysterectomy unless i get cancer. So i go to the doctor twice a year for a biopsy.

I would be interested to know what symtoms you have and how you deal with them. In my case I have put on 20lbs of weight which I can't lose and my hair has become very dry.

Connie Bourke · Newbie Joined: 18 Jan 2008 Posts: 1

I'm 60 yrs. old and was diagnosed today with atypical polypoid adenomyoma with a reccommended hysterectomy. I was told that if I was still of child bearing age they would do D & Cs on a regular basis instead. I have been told this diagnosis is very rare and my personal OB/GYN had never heard of it. I have also gained 20 pounds in the last year and have lost half my hair. Has anyone been told this could be due to the condition? I do not want a hysterectomy unless it is truly necessary.

chocjen66 · Newbie Joined: 13 Jan 2008 Posts: 2

Guest · Guest

I was diagnosed with atypical polypoid adenomyoma when I was 46 yrs. old...Unfortunately before I was given the correct diagnosis, I was incorrectly diagnosed with cervical and uterine cancer.....I received the incorrect diagnosis from a small local hospital, but thanks to my family doctor who suggested I get another opinion, he made arrangements to have me seen by a gynecological oncologist, and that is where the correct diagnosis was made..Thankfully I did not have cancer, but I did have to have a complete total hysterectomy. I have never felt better in my life, than I did after the hysterectomy. Sure the healing process was no fun, because I had to be cut, and they did biopsies of the organs they could, while they had me open, but after the healing process, as I said, I never felt better....I suffered for many many years with terrible cramping, moodiness, tiredness, backache, I know I was no fun to be around, 3 out of 4 weeks I felt like this....but there is light at the end of the tunnel, and like I said once I had the hysterectomy, I have never felt better...I tuly believe I had had this conditon for years, and it was never diagnosed until I was 46 yrs old....

camrinwhite · Newbie Joined: 08 Jul 2008 Posts: 1

I have received this diagnosis last month and I had a second opinion today. I am only 36 years old. They said if I am not going to try to get pregnant right away, a hysterectomy (leaving the overies) is the best option. If I wanted to get pregnant, then I would need to try right away and would have to have regular transvaginal scans and hysteroscopies to be sure I did not develop cancer. The doctor also doubted that I would have the furtility to get pregant without help and there would be increased risk if I waited.

Atypical Polypoid Adenomyoma-hysterectomy or not?

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