choppystix
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Joined: 23 Feb 2008
Posts: 4
Location: Sydney
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 Posted: 02/24/08 - 00:32 Post subject: Congenital Nystagmus-any known treatment so far? |
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Hey I have a condition known as Congenital Nystagmus, for those that don't know what it is, it's just an invoulentary movement of the pupil. That's really putting it as simply as I can, and honestly I don't know all that much else about it? I was born with CN, and it took me years to just accept the fact I have it and in recent years my eye movement has slowed a little, but really what I'd like to know is if there's any permenant fix for the eye movement? I can understand if my vision can't be fixed, even though it's not that bad anyways, but it's taken me years to come to terms with people just staring at my eyes move, or just asking me straight out why they move...because really I can't give them an answer?
I've done abit of research on a Dr Robert Burnstine, it seems he has some sort of procedure on offer for people with CN, and especially people with more treatable types of nystagmus, but I'd just like to ask if anyone knows more about him, or if they know of anywhere that offers any sort of fix for it here in Aust.
Thanks for reading. |
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