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Congenital Sucrase Isomaltase Deficiency diet plan

 The time now is 07/21/08 - 05:38
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PostPosted: 02/11/08 - 09:56    Post subject: Congenital Sucrase Isomaltase Deficiency diet plan Vote now! Reply with quote
I am a therapist(autism) for a 2 year old girl just diagnosed with CSID. Her mom and I are searching without success for a dietician or nutritionist familiar with this rare disorder. It is imperative that she get on to a specific diet in combination with the med Sucraid. Is there anyone out there who can help us?
Thanks so much!
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PostPosted: 05/15/08 - 00:34    Post subject: CSID Vote now! Reply with quote
There is a website at csidinfo.com with some good info and also a greap group on yahoo for csid where parents discuss their children and brainstorm together. Just go to groups and type CSID. I think it is the first one that pops up. Good Luck. My 8 year old daughter was also just diagnosed after being sick her entire life. I am also finding diet to be the hardest part of the problem.
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