Delayed Pressure Urticaria

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I had severe DPU for 5 or 6 years that would leave me limping with huge painful lumps/giant hives on the soles of my feet or hands that were so swollen I could not hold use them for hours. It was quite painful. Then one day-GONE. I have been hive free for 2 years now. I tried many remedies over the years--what worked best for me was loose fitting clothing, loose shoes, frequent position change and ice for my hands and feet. Rubbing or scratching the hives made them larger and more painful. None of the drugs really worked for me. I sincerely hope and pray you folks find relief soon.

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Hello,
I have DPU and because of the rareity of this disease, information is near impossible to come by. What are this boards rules about giving email addresses for direct contact? If they don't delete this my email is JasonDu16 at hotmail.com

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I have had DPU for about 5 years. My allergist told me that it will last for about 10 to 20 years. I take zyrtec and relefen and this combination works great! I make sure that I wear very good comfortable shoes, so no more cheap ones. Loose clothing is good. I do physical labor, but now know when enough is enough. Because if you do too much, you'll wake up in the middle of the night with a fever and swollen itches everywhere. Also, don't climb too many stairs or your knees will be unbearable. If you do have a flare up, getting cool is a very good thing. They should be gone by the next day. Hope this helps.

Guest · Guest

I also have DPU. I am on no medication for it and suffer daily. My DPU can show up anywhere but I mostly have complications with my feet. I can walk for miles but can't stand for 5 minutes without complicatons.

I wanted to let you know that I have had three children since my condition and I had no complications with the pregnancy or DPU during delivery or after. They were natural births and big babies (9.15). I hope this gives encouragement for those of you with the questions about pregnancy.

Guest · Guest

Hey all,

I too have developed DPU. Mine started in late 2007 with a viral infection. I've noticed a HUGE difference in severity with alcohol consumption. Even a single beer or glass of wine makes me far more susceptible to flare ups for days afterwards. I'm an immunologist, so I've treated myself somewhat like a guinea pig by running several experiments (controlled as well as possible). Since elimating alcohol completely my DPU has improved markedly but still occurs at times. At least I can ride my bike again.

JaxFL · Newbie Joined: 04 Jun 2008 Posts: 2

Hi guys... I have had DPU for about 3 years now. i got insurance a year ago and went to an allergist. He knew right off what it was. He prescribed me Zyrtec. It wasn't over the counter then, but thank god it is now. So far it seems to help. The spots that get pressure get a Lil red, but nothing like the pain i used to get in my feet and hands.
I really love to lift weights and this disorder stopped me for about 2 years.. Well one day i was fed up. i started lifting and dealing with the pain and swelling i would get. (i didn't know about zyrtec then) After a month or so of just working through it. it became less and less affected. I'm not sure how that worked, but it did.
People keep putting out as much information as possible for all of us to read. This seems like the only way we can all help each other.

JaxFL · Newbie Joined: 04 Jun 2008 Posts: 2

Hi guys... I have had DPU for about 3 years now. i got insurance a year ago and went to an allergist. He knew right off what it was. He prescribed me Zyrtec. It wasn't over the counter then, but thank god it is now. So far it seems to help. The spots that get pressure get a Lil red, but nothing like the pain i used to get in my feet and hands.

I really love to lift weights and this disorder stopped me for about 2 years.. Well one day i was fed up. i started lifting and dealing with the pain and swelling i would get. (i didn't know about zyrtec then) After two months or so of just working through it, it became less and less affected. I'm not sure how that worked, but it did.

People keep putting out as much information as possible for all of us to read. This seems like the only way we can all help each other.

chrisdee · Newbie Joined: 05 Jun 2008 Posts: 1

Hi.

First time I can remember was when I was in the army 19 years old.
Now im 37 and still have it. Mine DPU has become worse the last 2 years.

My symptoms usually are sleepless nights with painfull swollen hands, fingers, feet and toes but I can also get it other places. My DPU are induces by heat and pressure. Escpecially heat (Thank God I live in Norway where the winter is long). Sad

I usually get it during the night (while sleeping) or after handling tools, gardening, excersising, standing or walking to much.

Since last summer Iv taken 120mg telfast and 10 mg Cetrizine 2 times a day (moring and evening). It took about 8 months before it really worked and had full effect on my body. For about 1,5 months this winter I could not notice any symtoms. Now the summer has come in full force also to Norway. My DPU has flared up and Iv had it continiously for the last 6 weeks. Last night i didnt sleep at all. I barely managed to get up and go to work.

Befor I only took antihistamins when I got DPU and not preventive. This did not work so I stopped taking them after a few days. Turns out I had to take them every day (preventive) for it to work on this disorder. Iv been to about 5 different dermatologists and 4 regular doctors, but none of them told me this. Not befor I was written into my regional hospital last summer did I find out that I had to go on antihistamins continiously.
I fine bunch of doctors or what ? Sad

I cant wait untill winter again so my DPU hopefully gets better again.
I really like summer, sun and nice weather, but because of this disabeling condition I cant enjoy it.

My DPU has dictated my life since I got it. Iv had to choose a line of work
where I dont walk, stand or do to much excersise.

Like many other here have pointed out dermatologist really dont bother finding a reason for this condition. They say there can be many causes for each case so they dont have time to go through them all.

Also, as I understand DPU is a rare condition that many regular doctors have not heard about.

Based on this I am not very hopefull finding a cure for the future.

RJC · Newbie Joined: 13 Jun 2008 Posts: 1

My husband was diagnosed with DPU 8 years ago. He was treated with steroids and colchicine (a gout medication.) He was told his DPU would go away as quickly as it came and the doctors were right. He had the condition for 3 years and it went away on its own...up until a month ago. He has DPU again, and this time the gout medication isn't helping. He has an appointment to see his original dermotologist at the end of this month. When he had DPU years ago it would sometimes lead to chills and a low grade temp, along with swelling, mostly in his feet and hands. After a good nights sleep his symptoms would vanish and he'd be okay. Now the swelling in his hands and feet last a few days. We're wondering if any new treatments have been used with success in the past few years. He does not have gout but in the past the colchicine helped the most. He felt pretty good with the steroids too but no one wants to take them regularly. His sed rate was also monitored every other month while he was on the steroid. If anyone has successful treatments we'd appreciate hearing from you.

Dugal · Newbie Joined: 23 Jun 2008 Posts: 1

Hi, I am 41 and have had DPU for the last 16years. It can be a real problem but over this time I have found out how to “manage” my symptoms.
1. Firstly I take Zytrec every evening before I go to bed and since it can make you drowsy then this can be a good thing.
2. I always sleep on my back, if I sleep on my front then my face swells up.
3. I never sit with my head in my hands otherwise 6hrs later my cheeks or lips will swell up, it tends to effect fleshy parts lips cheek hands feet etc
4. Most importantly for me - try and cut down on wheat, if I have a wheat based cereal for breakfast then I know I am in for trouble, I now I stick to fruit and yogurt. For me reducing my wheat intake has made the biggest difference to my condition and is certainly something I would recommend trying. Wholemeal flour is better than white flour but still not great, wheat based beers and drinks are a disaster for me.
5. The doctors I have been to over the years have unfortunately shown very little interest in DPU. They initially told me I would just grow out of it and they are still telling me the same thing 16years later.
I hope this post helps someone out there and I also hope that we all “grow out of it sometime soon!” Thx

Delayed Pressure Urticaria

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