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antuna
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Joined: 21 Apr 2005
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 Posted: 08/19/06 - 23:00 Post subject: Duchenne muscular dystrophy |
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Hi, my 4 years old boy was diagnosed with Duchenne muscular dystrophy. I`ve learned that muscular dystrophy is a genetic disorder that weakens the muscles until they stop working. There is nobody to blame for his disease, it`s not contagious or something. And no point in blaming anyone at all. I just wanna know is there some comfort for him? Anybody know what is the life expectancy for persons with DMD?
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southward
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| Posted: 08/25/06 - 05:12 Post subject: |
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Hi, had a similar case with my relative (he never lived to become an adult). He had Becker muscular dystrophy, which is very similar to DMS, only the symptoms start later. Know something about DMD, it`s the most common type of muscle dystrophy (the doctors will always tell you that line). By age 10-12 your kid will probably need a wheelchair. The heart is also in danger, and his lungs. Kids with DMD can also develop scoliosis. Sorry to tell you that people with DMD usually don`t live long enough to become teens or early adults. But, the life expectancy depends on the degree of muscle weakness and the condition of heart and lungs.
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| Posted: 12/28/06 - 21:46 Post subject: Re: Duchenne muscular dystrophy |
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| antuna wrote: |
Hi, my 4 years old boy was diagnosed with Duchenne muscular dystrophy. I`ve learned that muscular dystrophy is a genetic disorder that weakens the muscles until they stop working. There is nobody to blame for his disease, it`s not contagious or something. And no point in blaming anyone at all. I just wanna know is there some comfort for him? Anybody know what is the life expectancy for persons with DMD?
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hi i have dmd and i am 21 a i use a wheelchair. I finished school and i am in my third year of college. people with dmd could live to their twenties and some last till their in their thirties it all depends on the person. But dont worry about that now. the best advice i can give you is take it one day at a time that is what my parents have done. and it is hard sometimes but you can make it. Put your trust in God, God can heal and one day i will walk again. be taking him to the doctor get theraphy he is young it will slow it down and help him. inform yourself about medicad for him that helps with going to the doctor and theraphy. take it one day at a time you will make it and he will make it. there is a lot of research being done right now on working on a cure and it is going good they are advancing.
feel free to ask me anything i am not an expert but i am a person with dmd and i will try to help. ********
God bless
**this post is edited by moderator ** private e-mails not allowed **
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| Posted: 01/02/07 - 19:57 Post subject: Re: Duchenne muscular dystrophy |
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| Guest wrote: | | antuna wrote: |
Hi, my 4 years old boy was diagnosed with Duchenne muscular dystrophy. I`ve learned that muscular dystrophy is a genetic disorder that weakens the muscles until they stop working. There is nobody to blame for his disease, it`s not contagious or something. And no point in blaming anyone at all. I just wanna know is there some comfort for him? Anybody know what is the life expectancy for persons with DMD?
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hi i have dmd and i am 21 a i use a wheelchair. I finished school and i am in my third year of college. people with dmd could live to their twenties and some last till their in their thirties it all depends on the person. But dont worry about that now. the best advice i can give you is take it one day at a time that is what my parents have done. and it is hard sometimes but you can make it. Put your trust in God, God can heal and one day i will walk again. be taking him to the doctor get theraphy he is young it will slow it down and help him. inform yourself about medicad for him that helps with going to the doctor and theraphy. take it one day at a time you will make it and he will make it. there is a lot of research being done right now on working on a cure and it is going good they are advancing.
feel free to ask me anything i am not an expert but i am a person with dmd and i will try to help. ********
God bless hi the doctors say they think my son age 7 has dmd but his calves are not large do u think this could mean they are wrong or sometimes do you not have large calves in the beginning of dmd ? would love an answer to this question thanks
**this post is edited by moderator ** private e-mails not allowed **
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| Posted: 05/27/08 - 10:40 Post subject: |
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| I have a freind with DMD and he is 37. He is wheel chair bound and needs around the clock suctioning for his trach. He also has adaptive equipment that allows him to use his computer. he is a pretty fast typist for someone who cant use his hands! It all really depends on the person, but usually around 20 years |
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