cyndijohnson
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Joined: 25 Mar 2008
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 Posted: 03/25/08 - 15:31 Post subject: HELP US!!!!: child with GI problems, genetics conditions, ey |
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| I have a 7 year old little girl. Ove the last couple of years she has developed several problems medically and we are seeking all the help we can get at this point. She was diagnosed with ulcers (4-5 at min), a cataract in left eye, severe astigmatism, eyes weakening, multiple dental anomolies with no cause, a genetic disease called 20 nail dystrophy, another gentic condition called uncombable hair syndrome, and clinically unproven celiac disease. Gluten free diet not helping, was taken off PPI meds and problems returnred with in 2 wekks of this. Stomach aches alot, chronic sore throat, nails getting worse, mood swings, hair has stopped growing and getting thinner and more unhealthy. she is also showing signs of memory problems and difficulties at school with dropping test scores and inability to retain information. She has had MRI, Upper GI, Colonoscopy all normal. EGD shows villious atrophy, butthat really tells us nothing. Blood test are abnormal but only mildly. If anyone has any suggestions, places we can get help, ideas, thought, whatever we take them all. We just want our daughter to feel better. |
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