maribel
Silver Member
Joined: 21 Jul 2002
Posts: 261
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 Posted: 08/15/06 - 02:38 Post subject: |
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Hi, I also suffer from the Hereditary Neuropathy with Liability to Pressure Palsies (HNPP). I had the first symptoms at the same age as your daughter, and now I’m 31 years old. At the first time, I thought that the symptoms were just from some injury, but unfortunately, they weren’t. I have the pain in my limbs, and some problems with my nerves in knees and elbows. I can’t even climb the stairs and drive a car for a long time, but I’m used to it now, because I had to learn how to live with this. This is a very rare, slow progressive condition, and it’s caused by mutations in the PMP22 gene. This disease affects peripheral nerves, which connect the brain and spinal cord to muscles. I don’t mean to scare you, I just share my experiences with you, so that you know what is Hereditary Neuropathy with Liability to Pressure Palsies about, and what are the consequences.
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