Posted: 06/27/08 - 14:14 Post subject: Hyperhomocystenemia
I have a 2 year old that was just diagnosed with this rare blood clotting disorder: hyperhomocystenemia.
I have found that only 200,000 in the US have this rare disease. I am reaching out to find some of them for questions/answers. She is currently being treated with 2 mg. of Folic Acid a day and monitoring her blood levels.
Any help and information you can get me would be so helpful in my search for answers.
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