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provine
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Joined: 31 Jul 2005
Posts: 15
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 Posted: 04/21/06 - 00:00 Post subject: Infant Cystic Hygroma |
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Hi there, I’m 15 weeks pregnant and I just found out that my baby might have a hygroma on its neck. I have to see a specialist in two weeks and if it does have a hygroma on its neck then the baby has to have genetic testing. I'm really worried and sad for my baby. Have anyone had a problem with infant cystic hygroma. What can I expect?
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kissee
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Joined: 19 Dec 2002
Posts: 264
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| Posted: 05/02/06 - 10:25 Post subject: |
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Hello, I am sorry to hear this I had situation with infant cystic hygroma. When I was 11 weeks pregnant I had an ultrasound and they saw cystic hygroma on the back of the neck and also had hydrops in the stomach. We were very upset. They told us that it could be turners or downs, didn’t give us much hope. I had to go back to the specialist at 16 weeks, and all of the hygroma and hydrops were gone! I have had regular check ups since and it has stayed gone. I am having a healthy baby boy.
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lucie
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Joined: 19 Mar 2007
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| Posted: 03/19/07 - 09:36 Post subject: you must be realistic |
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Having just gone through this myself, I feel it is important to have a realistic perspective here.
A cystic hygroma at 11 weeks of pregnancy is indicative of many potential complications. At this stage there is a 50 percent chance of a genetic abnormality (turners or downs) and if all is well in this arena, there is a 30 percent chance for countless other physical problems - including heart defect, miscarriage, and still birth. The hygroma will usually disappear later in the pregnancy but the information from its earlier existence is still important.
While I am happy for your health and the health of your baby, I must encourage more pragmatic posts here. On the positive side, this condition does not indicate a proclivity towards complications in future pregnancies. I think it is a wonderful thing that we can get this information so early.
If anyone reading this has this condition, please get all the information that you can - including a cvs test to determine at 11 weeks if there is a genetic abnormality.
Stay positive and informed! |
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LauraM
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Joined: 06 Sep 2007
Posts: 1
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| Posted: 09/06/07 - 15:12 Post subject: cystic hygroma |
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| Thank you for your post regarding the need for realism with this issue. My sister just (today) lost her baby to cystic hygroma at 20 weeks gestation. We're having a hard time finding a lot of information and are wondering if you could direct us to more information about successful pregnancies after a loss. Thanks! |
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Guest
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| Posted: 11/24/07 - 07:13 Post subject: cystic hygroma |
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hi
I also just recently lost my baby due to cystic hygroma. I am already 4 months pregnant when I learned that my baby is already dead inside. It is really very sudden and sad. It happens to be my first baby. Aside from the cystic hygroma there are also fetal hydrops.
I have learned that cystic hygroma is really a rare condition. And mostly due to genetics abnormality. There is no known history of genetics abnormality within my family and my husband's family.
Now I am really doing a lot of research with regards to this condition. I am quite fearful of my future pregnancies, hoping that this won't happen again.
It is quite comforting to know that there are similar cases but the cystic eventually disappeared resulting to a healthy baby after.
For the other mom's who are experiencing the same problem during their pregnancies, Be Strong for your baby and for your family. |
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CJay
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Joined: 28 May 2008
Posts: 2
Location: http://groups.myspace.com/lmnetwork
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| Posted: 05/28/08 - 22:11 Post subject: |
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Hello!
I recently started a group for Cystic Hygroma and Lymphangioma on Myspace. I have other families who share your same experience and may be able to offer you support. I hope you will consider joining. I am an adult living with CH and Lymphangioma. I blog about it on my page. Below you will find a link to my page and my group.
Friendship Page (105 Members): myspace.com/lmnetwork
Group (68 Members): http://groups.myspace.com/lmnetwork
Take Care!
CJay |
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CJay
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Joined: 28 May 2008
Posts: 2
Location: http://groups.myspace.com/lmnetwork
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| Posted: 05/28/08 - 22:19 Post subject: Cystic Hygroma, Lymphatic Malformation, Lymphangioma, Lympha |
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Posted: 05/28/08 - 22:11 Post subject:
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Hello!
I recently started a group for Cystic Hygroma and Lymphangioma on Myspace. I have other families who share your same experience and may be able to offer you support. I hope you will consider joining. I am an adult living with CH and Lymphangioma. I blog about it on my page. Below you will find a link to my page and my group.
Friendship Page (105 Members): myspace.com/lmnetwork
Group (68 Members): http://groups.myspace.com/lmnetwork
Take Care!
CJay |
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