Juvenile Myoclonic Epilepsy

Hi. My 10 years old child was diagnosed with juvenile myoclonic epilepsy. The doctor told me this condition is a lifelong condition. What`s the prognosis? I am one really worried Mom.

Hi. My kid has juvenile myoclonic epilepsy too. She is 15 years old. She has a normal IQ. The prognosis for juvenile myoclonic epilepsy, however, is not good. More than 90% of the children are retarded. My daughter is on diet, and I have noticed an amazing improvement. I couldn`t believe how food is important in treating juvenile myoclonic epilepsy. She has seizures after waking. Her seizures are morning myoclonic jerks, followed by generalized tonic-clonic seizures. Juvenile myoclonic epilepsy is not a genetic condition. Unfortunately yes, juvenile myoclonic epilepsy is a lifelong condition.

I am a 35 year old woman diagnosed with juvenile myoclonic epilepsy at the age of 12. My life was a little difficult in the beginning until my epilepsy was controlled by medication. I take Depakote and phenobarbital. I have a career and I am married. Maybe children wasn't in the cards for me but I lead a normal happy life. I am not retarded. I am a fast learner and I even finished college. I drive everyday. If people tell me I can't do something, I will prove them wrong. Please don't give up in life because doctors say you can't do something. And parents out there don't give up on your children. Life truly is what you make it. Just keep trying different medications until something works for you, or your children.

Get a clue oreilly. i don't know if anyone is more ignorant. sorry but oh yea the person who said epilepsy is contagious. you need to think before you post something on here. 90% of people with JME are NOT retarted. You are so ignorant when you make a statement like that. GET A FREAKIN' CLUE! don't post anything without getting the straight and TRUE facts!

oreilly wrote:

Hi. My kid has juvenile myoclonic epilepsy too. She is 15 years old. She has a normal IQ. The prognosis for juvenile myoclonic epilepsy, however, is not good. More than 90% of the children are retarded. My daughter is on diet, and I have noticed an amazing improvement. I couldn`t believe how food is important in treating juvenile myoclonic epilepsy. She has seizures after waking. Her seizures are morning myoclonic jerks, followed by generalized tonic-clonic seizures. Juvenile myoclonic epilepsy is not a genetic condition. Unfortunately yes, juvenile myoclonic epilepsy is a lifelong condition.

Hi .... I wanted to let you know that many people with JME can lead a very successful life. I am 100% normal. If you want facts check out epilepsyfoundation.org. don't listen to the first post that was given to you. talk to someone who knows about epilepsy not just guessing.

lanni wrote:

Hi. My 10 years old child was diagnosed with juvenile myoclonic epilepsy. The doctor told me this condition is a lifelong condition. What`s the prognosis? I am one really worried Mom.

The majority of people with JME are of normal/above normal intelligence. I have JME and am currently in university getting my bachelor of science.

Passed by here....amazed me when I saw that someone actually thinks JME is contagious.....and wait! people are retarded. Well I am here to let the mom above know Yes I have JME...I take medicine...never have I had a problem since. I drive...I work....I have a Masters Degree and yes as mentioned above most people with JME dont only have amazing memory capabilities but we are great in math. So once your daughter has her medicine on track she will be fine and lead a normal productive life. And to Oreilly I think the name was...please before you post...read and learn....dont post stupidity. There are alot of people out there that choose not to learn and remain ignorant and pass this ignorance on, maybe in fear. Dont do that.
just my thoughts as I passed thru

I don't know what that lady is talking about up there that 90% of people are mentally challenged pending the diagnosis of JME. I was just diagnosed yesterday (8 Jan 2009). And I am absolutely POSITIVE that the information she presented is false. There is no correlation with JME and mentally changing characteristics. If she wants proof, come get it lady. I work for the Government and I am currently working on my Masters in Business Administration and IT (for you lady, information technology - which means I work on computers and am much more brilliant than you will ever be). I cant believe you would post that and scare other people, but maybe you should get your info straight. To everyone with JME you are completely normal and I wish the best to you with your flinching and seizures. You cant help what you are born with! Its just something for you to overcome and make you an even stronger person, mentally and physically!!