Limb-Girdle sub category Muscular Dystrophy

Our 35 year old son was diagnosed with MD at 12, he has only been in the wheelchair about 7 or 8 years now but he has deteriorated quickly since then. He is at the point now where he is down (in bed) more than he is up. His shoulders and hips are subluxating, causing a great deal of pain for him. His neck and back are also causing problems as the disease progresses. There is not an MDA clinic within his tolerable travel range and our military doctors are basically saying they don't know what to do for him anymore.
We have asked many times if there are programs or grants available to help with making his bathroom accessible, especially the shower. He cannot get in and out of the tub without paying for it physically afterwards and I cannot help him very much in that regard (back issues), and his dad is currently stationed away from home until next summer. We don't have the money to renovate and with the current financial crisis we don't want to take out a loan unless we have no choice. We bought our hightop van and paid for the lift conversion and tie downs a few years ago when he couldn't transfer anymore, so our savings is depleted as well.
I am at a loss of what to do for him, what specialists to ask for etc so any help at all would be greatly appreciated!

My wife is diagnosed with lgmd, calpainopathy type exactly. After extensive research we have started on 1. Antioxidants in natural form to slow the autoimmune system attack on muscles 2. Homeopathy medicines to manage emotional causes of the disease. 3. Regular pranayam and yoga. 4. Mutivitamins in natural form to strenghthen bone structure. 5. Spleen correction herbally as it was stipulated in some unnani and chinese medicine journals that this disease is caused by spleen disorder.Also read a recent medical journal which said that spleen can also take over role of stem cell producer for body. Giving it a try as it is harmless herbal preparation. 6. Also heard that mono atomic gold found in morning dew can also cure lgmd but hasnt given it a try yet.
Result: There hasn't been any noticeable increase in weakness of muscles in last one year. Instead overall energy level has improved but no improvement in range of motion of muscles.according to docs it is still very encouraging. ur story is welcome. vikas_baghla-at-yahoodotcom