Wow, this is very rare and complex condition. I was studying about it. I find it dangerous because it is a progressive disease, there is no cure and the treatment consists of controlling the symptoms. It is so progressive that it may lead to acute lymphocytic leukemia.
Has anyone around you been diagnosed with this disease?
Posted: 06/27/06 - 10:31 Post subject: myleofibrosis
I was just diagnosed with myleofibrosis last week, since then I've been trying to learn all I can about it, needless to say the more I discover the worse I feel . I suppose what I find the most difficult to deal with is my doctors attitude of 'lets monitor your blood for awhile longer before we decide on a course of action' I am not one to sit around and wait for the worst, I'd much rather fight it head on and am willing to try anything.
I was diagnosed with Myloid Fibrosis 7 years ago and hve been on Agrlyn for over 6 years with no side effects at all. Still very anemic but platelet count is normal. It was 1.1 Million when diagnosed.
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. I suppose what I find the most difficult to deal with is my doctors 
