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audrey.etgen
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Joined: 08 Jun 2008
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 Posted: 06/08/08 - 21:24 Post subject: Porphyria |
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| I am getting so frustrated with the doctors right now. I have Porphyria in my family and I had a hysterectomy last year and I experienced the pain, vomiting, nausea, constipation, red urine, muscle weakness, depression, basically the works. The doctors thought I was crazy. Now, they want me to produce symptoms, but I am not having any. Are there any tests out there that can diagnose CHP or AIP when you are NOT having symptoms? I had blood work come back that showed high copoporhyrin levels, but no one tested my urine until months after the attack. I just need guidance... |
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Guest
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| Posted: 07/03/08 - 10:09 Post subject: porphyria |
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Hi!
I'm sure there MUST be a test that they can do without symptoms, but I don't know what it is.
I don't know how safe this is, but if you want to induce symptoms, just go on the Atkins diet for a couple of weeks. If you have porphyria, you'll begin to get symptoms and they can test you. However, again, I don't know if it's very safe to do that. |
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