Leida
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Joined: 22 Mar 2008
Posts: 13
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 Posted: 05/03/08 - 19:16 Post subject: |
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I haven't had a miracle cure either, though it's only been about seven weeks for me - and I do have some other medical conditions.
I was slowly starting to feel better after about three weeks, but ditched the calcium eventually as I simply cannot tolerate it (citrical). I was doing pretty well in America, but when I got back here, I crashed and burned. I'm hoping it's a fibromyalgia flare induced by a very very long and unpleasant trip.
Had labs taken last week, I should find out my levels this week. Meanwhile, tired, achey, and had my first migraine since surgery last week-end after I got home. I expect it's up and down, and while some people I've talked to feel better very shortly, quite a few have said it takes several years to really feel back to where they were pre-illness.
Wish I could offer better, but I'm not going to hope for miracles, and I'm trying not to push myself anymore than I have to. I have gotten considerable improvements in eyesight, cognitive function (I can read novels again, yay, and write in comprehensible sentences, though I'm still nowhere near where I used to be), and have had quite a lot of lessening of bone pain, as well as losing a lot of the waterweight I gained with the tumour, but I still have some neurological weirdnesses and exhaustion, as well as the occasional icky tummy - the exhaustion came back right after the trip, so that may have caused it.
I hope you're okay and that the enlarged gland isn't another adenoma. I had only one bad gland, it didn't show up on the scan, but they found it - it was small, but I've had high calcium (though not high PTH) for years. They did biopsy the other three glands, and those and my thyroid all look to be normal. But not being able to tolerate the calcium after the first few weeks is scaring me a little - though my regular doc says that a lot of people don't do well with calcium supplements. Plus knowing that if you go hyperpara once your chances of doing it again are considerably higher than the general population...don't even want to think about it. I couldn't afford to do the trip and surgery again. |
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