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poppyseed
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Posted: 02/05/08 - 18:52 Post subject: dear kenAR |
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My son is only 12 years old, he has been hospitalized 7 times in 6 months. He also had an endoscope, they didnt know what it was they saw, but called it an ulcer. in the duodenum) others docs say it was from exessive throwing up, who knows, anyway , his doc ha sgiven him 30 mg of extended release morphine tabs. Wow, i would say your doc is being very stingy.
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Posted: 02/07/08 - 17:16 Post subject: Re: chronic pancreatitis |
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| HALLOWEENDIANA wrote: | | I'm with all of you...have had CP for 7 years now...never had any problems until my gallbladder was removed and found I have pancreas divisum...my pancreas is basically divided in half...making my bile ducts very very small....Just got out of the hospital...had an ERCP done...going to do another one in 7 weeks with a bigger stent placement...I have severe pain EVERY SINGLE MORNING...when I wake up...I can almost time it...I call it the "witching hour" LOL...does anyone else experience morning pain as well?? I can guarantee the pain will be there when I get up AND...sometimes its bad enough it wakes me up. |
I went to emergency last Oct and was sent home before the blood work came back. I followed up with my doctor and I have acute pancreatitis. The doctor said avoid alcohol (I rarely drink). The following month my counts doubled but the pain stopped.
I saw a specialist and he ordered an ERCP, and found scar tissue at my bile duct (I had my galbladder removed 3 years ago, but kept having painful attacks).
Now I know it was pancreaitis all along after my surgery, and wish the other specialist & surgeon had diagnosed it earlier - the prior specialist said I had IBS two years ago. The surgeon said I had scar tissue and to live with it. Had both of them diagnosed me properly, I wouldn't be acute today. Grrrr.
Following the ERCP, I had pain from the procedure and it keeps reoccuring.
Prior to the ERCP the pain followed eating food, and was worse in the afternoon/evenings and is similar to a galbladder attack.
After the ERCP - I continue to have the same pain and tenderness that it feels like I just had the procedure done - it's been over a month, and I have cramping & pinching feeling in the morning and afternoon. Super tired. I am sick of being sick.....! |
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Posted: 02/09/08 - 18:42 Post subject: pancreatitis and wht to eat, not to eat |
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I just got out of the hosp after a day of pancreatic attacks.Turns out I have a bad gall bladder and a lesion on my pancreas. I was shipped to another center and had a stent placed in my pancreas. Since that, I have remained fairly sore in the right side of my abdomen--sore from the inside. As for food, so far I am finding eating several very small meals throughout the day is working well. I am drinking the new V8 Fusions, which are tasty, and eating some Activia yogurts. I have yet to start back on real chewy foods as I am hoping to ease back in to them. Oddly, like many here, no one has told me about diet so I have been researching like crazy. But what I am finding is all things in moderation and small doses works best. I am eating cream of wheat, some breads (crustless), noodle soups, yogurts, sorbets, jello, low fat puddings, and any soups. So far so god...although I am stll sore. : )
These posts are very helpful. And good to know we're all in this together. I think the emotional roller coaster is as hard on the insides as anything.
Hang in all. I am... |
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poppyseed
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Posted: 02/10/08 - 12:23 Post subject: milk? |
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| My son has been eating nothing practically, but everytime he still gets pain. Does anyone here think that milk could be a problem? He only drinks non fat. |
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rubia5005
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Posted: 03/18/08 - 20:14 Post subject: Pancreatitis |
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I was released yesterday from the hospital. I had acute pancreatitis. I can eat myoplex shakes. Thats about it. I add berries to it and drink half for breakfast, half for lunch, and about 2 or 3 small redskin potatoes for dinner. That is the only thing that makes me feel like I am not dying.
Here is the recipe for the potatoes, they are actually so good my husband likes them.
Chop up red skin potatoes with carrots, garlic, onions, red and green pepper. I add about 5 tablespoons of water and 4 of sugar free lemon juice. Bake in it the oven on 385 for 40 min with tin foil covering the pan. Then remve the tin foil and continue baking about 30 min or until soft.
This will help you not want to rip your torso off. |
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Posted: 05/03/08 - 18:54 Post subject: chronic pancreatitis |
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| I have had chronic pancreatitis since 1999. 25 hospitalizations in the first 2 years but haven't had to be hospitalized in quite some time. I'm down to about one major attack a year, but have learned I can usually manage it with a clear liquid diet. I've discovered that blood work only comes back positive if I've vomited, so usually don't bother with a Doc unless that happens. When blood work is elevated, I have it repeated after 2-3 days or so depending on how I'm feeling, just to make sure the numbers are returning to normal. After so many years, I can usually tell when an attack is coming, so I start clear liquids right away. After 2-3-4 days of clear liquids, a very bland diet for a few days is also a must. As one DR told me, EAT WHITE. rice, pasta, potato without butter, cream of wheat, sugar free italian ices are all foods that work for me when coming off of an attack. I drink lots of water, grape juice diluted with 1/2 water, and decaf tea. I would skip things like spaghettio's and other canned, processed foods and stay way from anything difficult to digest like corn. Fried, fatty, spicey foods and alchohol are your enemy!!!!! |
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Posted: 05/09/08 - 21:59 Post subject: Pancreatitis |
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| I just got my gallbladder removed because my doctors and the surgeon believed that it was causing my pancreatitis attacks. It's been a ween since the surgury (still recovering). My lipase was 602 after the surgury (the highest it has been since the first attach whch put my lipase at 462). I am praying to God that it everything in back to normal now that the GB has been removed. Food is the biggest problem for me. Turkey sandwiches are fine but really boring. I find ensure shakes to be Okay on most days. I don't wish this disease on my worst enemy. Hang in there my friends and watch what you eat. Above all, praise the Lord and ask him for help on those tough days. |
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D Marie
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Posted: 05/12/08 - 22:27 Post subject: acute pancreatitis |
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| Hi, I have not long been released from hospital with acute pancreatitis. The doctors have put me on a low fat diet and nil alchol. As I am a small person wieghing 46kgs, I cant afford to lose anymore wieght as I have a house to run and 4 young boys. If anyone has any suggestions on gaining weight please your answers will be appreciated. |
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Posted: 06/24/08 - 13:41 Post subject: acute pancreatitis |
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| Hello... i wanted to reply to your post because i was diagnosed with pancreatitis 1 week after my 21st birthday. i went to my doctors and was prescribed medication. she didnt give me any type of diet plans and really didnt even tell me how serious of a condition it was..but a couple months later i felt completely recovered, although my alcohol use continued and now i am 22 and its returned. now its worse then before. im realizing that i cannot eat anything without wanting to throw up. but i have read all these posts on here and its helped me alot! your diet tips sound pretty good compaired to what i've been eating. i love spaghettios! I went food shopping and stocked up on lots of vegetables and fruits. i got some fat free ranch dip so that i had some flavor. and i also eat cereal like cheerios and honey bunches of oats with just a little bit of milk (hardly any). i can pig out on that type of stuff and not wake up hurting. but i am still hungry all time time. i ate a piece of chicken my mom baked, it had no fat (and tasted SO good!) but it upset my stomach alot. pasta doesnt seem to upset me too much but i know its heavy and im not sure if i should keep eating it. i've been looking online for a food guide for me to follow...seems like the best answer and guide is to eat anything your body can handle w/o making you sick. |
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Posted: 07/07/08 - 14:04 Post subject: pancreatitis |
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| One summer I had pancreatitis and couldn't eat anything. Well, I did find something that worked for me and that was good old watermelon. I lived on watermelon the whole summer till I was living, breathing watermelon. It was a Godsend. Slowly but slowly I pulled out of it and was able to eat meager amounts of different carbs. You might try it and see if it works for you. |
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