Posted: 06/14/07 - 02:56 Post subject: SEVERE BIRTH DEFECTS
HI I HAVE A 14 MONTH OLD DAUGHTER WITH SEVERE BIRTH DEFECTS SUCH AS AGENESIS OF THE CORPUS COLOSUM, DERMOID SINUS ON THE BRIDGE OF HER NOSE, RAISED UPPER PALLAT, SEVERE HEART DEFECT( CLOSEST TO HERS IS TRUNCUS ARTERIOSOUS) AND ORGAN DEFORMITIES.... THEY SAY SHE HAS A CHROMOZOME DEFECT BUT ALL TESTS COME BACK SHE DOESNT....NOW THEY ARE SENDING HER BLOOD WORK TO A HIGH TECH LAB IN TEXAS FOR FURTHER TESTING... CAN ANYONE TELL ME ANY SYNDROMES THEY CAN RELATE TO HER DEFECTS OR KNOW OF SOMEONE WITH SIMILAR DEFECTS WHO HAS SURVIVED .... I NEED A LITTLE REASSURANCE THEY WANT ME TO SIGN A DO NOT RESSISSITATE ORDER FOR HER AND I CAN GIVE UP...SHES MY BABY AND I FIND IT HARD TO BELIEVE IN THIS DAY AND AGE THEY CAN NOT HELP HER...
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