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xaleia
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Joined: 15 Aug 2008
Posts: 2
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Posted: 08/15/08 - 11:47 Post subject: |
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| Wow, just made a long post as a new topic and didn't even think to see if anyone else had made a thread! Anyways, I hope someday a doctor will see an interest in this case and work to make a cure for SM/PC. Until then, I have to settle for adopting children instead of having them (which, to be frank, is MUCH better than having your own child anyways... with over-population becoming a threat to our existence!). |
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EmilSMCro
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Joined: 27 Dec 2007
Posts: 7
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Posted: 09/16/08 - 03:36 Post subject: |
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I suggest to everyone at this forum to visit the my space group about steatocystoma and find a way to contact zirafa(emilsmcro).
Kind regards |
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brams1
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Joined: 30 Nov 2007
Posts: 5
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Posted: 09/19/08 - 07:45 Post subject: |
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I am a 35 year old woman from Australia and I have SM. I inherited it from my father who got it from his mother. My cysts are very bad and all over my face and I have some on my arms. My father, uncle and Grandmother also have them all over their faces. I am yet to see someone write in saying they have it on their face too. Most people have them on their chest , neck arms and back. Are my family the only ones with SM one there faces.
I recently had a baby girl and I am terrified that she too will get SM too. It has haunted me since I was about 17.
I have seen at least 20 different doctors and tried all sorts of tablets, creams herbal treatments and acupuncture, nothing seems to work. The only thing that helps for a while is squeezing. But this is painful and often they can't be squeezed for some reason.
I recently tried laser treatment which was very painful and scarred my face. I am on a mission now to find some sort of cure or something that will help. I worry so much about my daughter may get SM and having to go through what I went through growing up.
This must be a very rare condition as I have never met anyone else with this on ther face other than my family. I often think if a skin specialist had this condition than he/ she would be driven to fine a cure.
I realize that it's not life threatening, but having people stare at you where ever you go eats away at you. |
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gingerbread
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Joined: 25 Sep 2008
Posts: 1
Location: Germany and UK
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Posted: 09/25/08 - 13:22 Post subject: OSIM heat pad to treat SM |
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Hello everyone,
I'm new to this forum although I've read most of your posts on this topic. I was diagnosed with SM about 6 years ago by the UK health service and was told there was nothing I could do unless I was prepared to go private and be prepared to suffer irreversible scarring (they are on my chest). I did attempt to go private but ran out of money before I got treated. I'm from UK but now live in Germany and was thinking about trying again over here and started to research again. A Google just now turned up a new and interesting result: Apparently, something called an OSIM heating pad can be used to treat SM, or at least sebaceous cysts. As SM (as I understand it) is just another form of sebaceous cyst, I'm assuming this would work. The method seems to involve placing the pad on the affected area for 10 minutes every day for 10 days. Can it really be that simple? Does anyone know? Looking forward to your replies!
**edited by moderators** |
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Jenny
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Joined: 03 Mar 2006
Posts: 621
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