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Juanita Clarivette
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 Posted: 04/16/07 - 19:29 Post subject: Stomach migraines or Epilepsy of the stomach |
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| My son began having severe stomach cramps from the age of one.He was diagnosed with epilepsyof the stomach and had been on medication for thirteen years. The presentation of the seizure is what really confuses me. He screams out in pain and his body goes stiff. He has had EEG's done and all of them come back clear. The seizure lasts no more than a few seconds and he clutches at his stomach as if in pain. I need to know if there is a possibility that he was misdiagnosed and if so what can I do. My GP mentioned that it could be migraines of the stomach and really need to know how this condition would present itself. Please help!!! |
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| Posted: 04/02/08 - 09:48 Post subject: Stomach migraines or Epilepsy of the stomach |
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Dear Juanita,
I have had epilepsy of stomach in Iran when I was 8 years old were as nothing showes in my EEG , Ct scan, or Cat Scan. I have been told it could bePsychosomatic because the meds do not help as they should I have tried anything possible. I only have the episodes when I am angry and stressed out ONLY. Now I am starting a neuropsychological testing. Just would like to insure you that none of the doctors here are really aware of it and when I told them I have epilepsy of stomach they just laughed at me. I am 25 now still looking for answer if I found anything I will let you know and if you found anything inform me too please. |
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rabbit_food
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Joined: 21 Apr 2008
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| Posted: 04/21/08 - 15:49 Post subject: Re: Stomach migraines or Epilepsy of the stomach |
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Juanita
I have a history of migraines of the head and stomach. My physician tied these to my dairy allergy and when I omitted dairy from my diet, they disappeared.
I almost didn't post this because it seems obvious to ask, but has your son been tested for allergies?
The stomach episodes were very intense, with me crying out and convulsing in pain, followed by hours of vomiting.
Hope I didn't offend you by suggesting this. |
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| Posted: 08/19/08 - 19:53 Post subject: stomach migraines |
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Juanita
My son has been diagnosed with something called cylcic vomiting from the age of 6 months, and now at age 7 it has become stomach migraines which is apparentlty a normal course for this to take. Basically it is a debilitating and highly challening disorder to manage. We have a very good specialist who has been really helpful and has helped us to identify triggers and work through a serious of medications to find the best possible support for my son. Common triggers are tiredness, excitement, such as round holiday time which was ussaully when he would get sick. and being run down, such as after a period of illness. After these times the episodes occur with alarming frequency and then seem to settle for some time. But there is some good news through our specialist paediatrician we have found that he is helped by having a daily dose of acidophyliss in chewable tablet form, (this is a live healthy bacteria that helps build good intestinal flora and help ward of any virus or illness that may trigger an attack.) Lots of rest and keeping everything calm and teaching him simple stress management anmd yoga hae worked a treat. Hope you find this useful |
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