The consequences of choroid plexus cyst

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I just wanted to add a similar message to many of the more recent postings- I found that a lot of the information posted by people at the begining of this website was false and made the CPCs sound a lot more frightening then they really are. We were just told that we have a CPC, and our doctor was so great. He said for us not to worry- I am 30, I tested 1/10,000 for downs and trisomy 18 and I have no other defects (heart, clenched fists, kidneys,etc.). I was so scared at first as well- you never want to hear that there is any possibility of anything wrong with your baby, but after doing TONS of research and having such a positive experience with my doctor, I am not worried. Try not to freak out too much!!! Smile

spzavala · Newbie Joined: 24 Mar 2007 Posts: 1

My wife and I are 4 mos. pregnant. An ultrasound revealed that our unborn son has (unilateral) choroid plexus cysts (2) in his brain. However, there are no other signs (as of yet) of abnormalities in the heart or other organs. My wife and I are extremely worried as we were told that these types of cysts linked with abnormally developed organs can be an indicator of Downs syndrome or Edwards Syndrome. We were given an option to have an amnio done are going to go through with it. Our amnio is not scheduled until next week. This is going to be a rough week as we are terrified of the worse. Anyone out there have any advice or any expereience similar that they would like to share?

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I'm apparently the youngest and definitly the most inexperienced out of all these women. I'm 21 years old I'm 20 weeks pregnant with my first baby! I have known 2 other people my age that had NO problems during pregnancy, however i obviously seem to be the one with the worst luck. My 18 week ultrasound showed that my baby girl has a bilateral CPC. My husband and I are in the military and their tactics for telling us any info or reassurance is for lack of a better word crappy. I have researched many things online about CPC's and so far what i've come to the conclusion is that it's a marker for genetic abnormalities and that the risks are much greater obviously depending on age and any history of genetic problems within the family. Well both my husband and i have no history of any genetic problems and i am still young so the risks supposedly are much less and i'm being told that it will "resolve on it's own." I'm freaked out this being my first pregnancy and all. Everything was going so well and now i get told my baby has a CPC and that my Physican assistant (which is all the military will offer me) says there's nothing they or i can do. I'm going to schedule a level II Ultrasound tomorrow as well as a genetic counseling meeting, but from what i've gathered if it shows no abnormalities it is just an isolated CPC. And that it Should go away. BUT WHAT IF IT DOESN'T and there AREN'T any abnormalities my little girl is just gonna go around life with CPC's on her brain??? I cant ever actually talk to a doctor it's like murder trying to and i wanna make sure these people know what there talking about and can detect it. Are there many cases where they think it's isolated but the baby turns out with Trisomy 18? Should i get an amnio even though there is such a high risk for miscarriage due to it (1 out of 250) or should i just settle with waiting for the Level II ultrasound and if the CPC's are still there just sit around and wait??? Ugh...i was told the first pregnancy was hard but nothing like this!

ai2004s · Newbie Joined: 27 Apr 2007 Posts: 1

Yesterday I discovered that my baby has CPC yesterday I was crying because cyst & brain when they go together they are scary. Today doing my research I am more full of hope because I am reading a lot about it and I see that it should not be a problem. Anyways though my husband & I want to do the amniosenthesis to be 100% sure. Although i did have early assessment tests done and I had very good resaults I still want to be sure.

My god I was so scared yesterday and today I am full of optimisem...

kwater76 · Newbie Joined: 01 May 2007 Posts: 1

My son had the same cysts on his brain. They went away and all is healthy. However, though it may not be related ...I have also noticed elevated intellegince and an outstanding immune system. My son has only had 3 sinus infections in his 7 years of life. He also has a remarkable ability at playing sports. It is like there is nothing he can't do or be good at. However, I have been researching this today because he was diagnosed with AD/HD. I was just curious if they were linked somehow. I have found no evidence that they are thus far. However, if you have the same issues please reply i would like to hear about it.

Guest · Guest

My second son had these while I was pregnant. My husband and I went online to find out everything we could about it. There is so much scary information out there, we were complete wrecks until the next ultrasound. But by then it had resolved itself and everything was fine. He is now 2 1/2 years old and is completely healthy and mentally intact.

Guest · Guest

At my 18 week ultrasound, we were told that our little guy had bilateral CPCs. I was a little scared (okay- more than a little)...but after a day of processing, I am feeling much better. Everything else looks great. If a baby has trisomy 18, the head is usually small...there are other signs. I've taken care of babies with trisomy 18 as a NICU RN. I am not having an amnio. It would not change my course of action. There are MANY misdiagnoses made on ultrasounds and CPCs 99/100 times mean nothing at all. Relax and take it easy. We should learn to love our children unconditionally...even before they are born. Smile

sbthauer · Newbie Joined: 07 Aug 2007 Posts: 1

I am 35 and pregnant with my first. I just had the 20 week U/S this morning and the doctor found a small choroid plexus cyst on one side of the baby's brain. At first, you think how can that not be a big deal? But my doctor said if it was his child (and he has 4) he would be more worried about tripping on his way out the door or about what to have for lunch today. He said it is one of those things that he wished he did not even have to bring my attention to it. That said, I have also already undergone genetic testing (I had a CVS in May), and the results were normal. From everything I have read online, a CPC can be a soft marker for Trisomy 18. The way I read the research, baby's with Trisomy 18 often have this marker, but just because a CPC is found certainly doesn't mean that your baby will have Trisomy 18. Also, if everything else on the ultrasound checks out, that is a good sign. My feeling is that if you are going to worry the rest of the pregnancy then maybe it is worth getting an amino. My CVS was trans-abdominal, and it really wasn't a big deal. The pain was minimal, and I had no spotting or cramping afterwards. With all of the information out there, just trying to keep peace of mind can be the hardest thing of all - good luck!

Guest · Guest

I had my ultrasound done at 20 weeks and they just called me a few days ago to tell me they saw a cyst on my babys brain. The first thing the Dr told me was not to worry and the baby is perfectly halthy so far. They say these cysys usually go away in the third trimester and even if they DIDNT....the baby is still perfectly healthy and it doesnt affect their learning at all. ONLY if your baby has other abnormalities they find in the ultrasound....(heart not growing properly, clentched fists, weight decrease, problems with the kidneys, etc)... Then no need to worry if your baby would have that other disease that causes mental retardation. (trisomy 1 Cool

. OF course I still am very scared and I wont feel 100% okay until she is born. However, the Dr gave me a 99 % chance that she is alright and I should not be concerned since there was nothing else abnormal. I also had the testing done for Downs Syndrome at 14 weeks and that came back ok...So I try to be positive that my baby is ok...

Guest · Guest

Hi, I just wanted to say that reading these posts have been soooooo helpful. I'm feeling so much better, and am optimistic that my baby will - God Willing - be ok.
I went to my 20 week ultrasound last week and got a call yesterday about the results showing CPS. I totally freaked out! I'm scheduled for a follow up ultrasound II tomorrow. When I called to schedule the ultrasound, the lady asked me whether or not I wanted an amnio. Again, I freaked out, thinking, why are they offering this to me without even checking out results from my ultrasound II. I think the whole thing is overrated, and whether or not there is a related genetic problem, the way of informing the CPS are nerve wrecking. The facts should be stated clearly before making it seem like there is a huge problem. Once confirmed it's another story, but the lady on the phone was very blunt with me, and I couldn't stop worrying until reading up more on the topic and of course the posts. The second post however needs to go! You are scarring us women!

The consequences of choroid plexus cyst

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