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 Posted: 01/25/08 - 10:14 Post subject: |
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to kwater76
It's interesting that you bring up ADHD. My daughter (born 1992) had bilateral CPCs, Amnio turned out fine. She was diagnosed with ADHD when she was 7 - primarily inattentive, hypersensitive, disorganized. She's lefthanded, and her processing speed is average. BUT, her cognitive skills are in the high superior range, and she is musically gifted(she's been tested because of the ADHD). She's got perfect pitch, plays violin, and has vocal control far beyond what's always been expected for her age. I've always wondered if there was a connection, which is why I do a search on this every so often. To the mom's out there waiting: Hang in there. The waiting's awful, but statistics show it'll be okay. |
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julez_xoxo
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| Posted: 03/07/08 - 09:16 Post subject: isolated cpc |
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| I had my 18 week ultrasound and we found out that we are having a little girl!! I went to the doctors a week later for my monthly check up and she told me about finding a CPC. My heart sank. I am a healthy 23 year old woman and the last thing I was ready to hear was that my baby was deloving different than most others. The doctor went on to say everything else on the u/s was normal and our baby was growing right on schedule, and that I should not worry about this at all, as most of them go away by the 28th week anyways. Why do they even tell us this?? Just another worry to add to the 100 others. I have a follow up u/s in 2 weeks and I swear this is going to be the longest 2 weeks of my life, how do you tell a mother to be not to worry about something like this???? I feel for all woman that have to go through this, added stress that isnt good for us anyways. I know my baby is healthy and this is just a "finding" that means nothing, but it is going to be hard to sleep at nigt! Good luck to all of you, ur babies will be born healthy and happy. |
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| Posted: 04/03/08 - 18:12 Post subject: |
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| I am in the same boat as every one else. I got the results today. My thoughts are that what will happen is going to happen. I will love this baby as much as when he is born as I do right now. My hopes are that he is a very healthy boy but I can't change what God has decided to give to me. I found that the more I read the more confused I got. I hate that I know anything b/c for me it doesn't matter. I would never terminate a baby. Best of luck to all of you ladies! |
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tipdc
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| Posted: 04/26/08 - 21:07 Post subject: |
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| I am from China. Thanks a lot I chose English as my major. I feel much better after reading these messages. Two days ago, I was told my baby had CPC on its left head. The doctor let me go to city's biggest hospital to do further check up. She didn't say too much info. just said : it might be dissapeared. but to keep it or not need to hear the professional expert 's advice. - her voice/tone were so cold. My whole family members were scared. I couldn't find useful info. on the chinese websites and began to search on the English websites and learn a lot here. After reading massive messages, Waitting in clam is the best choice for us. After 25 days, I will have another Ultrasound. I absolutely believe everything is going to be okay. |
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| Posted: 06/10/08 - 14:32 Post subject: |
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| Thanks to everybody show posted on this thread. I just had my 20 week ultrasound today and told me the baby has a small CPC. I am worried, of course, but feel much better after reading this thread. I will ask for a level 2 ultrasound.. I hope things will be ok. |
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ivankoj
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| Posted: 06/21/08 - 22:30 Post subject: Choroid plexus cysts |
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| I have a six month old son now, but when I was 18 weeks pregnant, my son was diagnosed with 3 choroid plexus cysts on his brain. I got the news a few days after my ultrasound, I was devastated. Here I am thinking I am doing everything right: eating good, taking prenatal vitamins, and reading lots about pregnancy; and I get this news that something is wrong. Within days I had an appointment at the University of Chicago Hospital to see the head of fetal medicine. My husband and I went to the appointment where they confirmed the cysts were present using a 4D ultrasound. The physician gave me a choice of going home and waiting (because they usually resolve by 28 weeks gestation) or doing an amnio. After carefully weighing the odds, my husband and I decided just to go home and wait and keep doing everything we were doing to care for the baby. My maternal screen was normal and the ultrasound at U of C was normal (except for the cysts). I had ultrasounds about every month up until 29 weeks. At 29 weeks, we went back for a 4D ultrasound to see if the cysts had resolved. It was at this ultrasound it was confirmed the cysts had resolved and we were having a healthy baby. At 39 weeks, I delivered our son by C-section and the best part of that day was the neonatologist telling us "Congratulations, you have a healthy baby boy!!) I always said to my husband that if everything was ok with our son that I was going to write to other moms and dads who just got this news and tell then to hang in there (no matter how hard it might be ) because chances are everything will be ok. I worried myself sick for 11 weeks of my pregnancy about the cysts, and all along it was just a part of his development. Our son is completely healthy and active and doing everything he is supposed to when he is supposed to (cooing, rolling over, crawling, etc). My pediatrician did not even want to discuss the subject, he said the subject was over because the cysts had resolved. My son is so happy and my husband and I feel very blessed. I hope this helps all the worried parents out there. Feel free to ask more questions, I am very open to talking about this because it helps to talk to other parents in the same boat. |
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| Posted: 09/11/08 - 07:42 Post subject: Re: choroid plexus cysts - been there done that (mine 12 y |
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| Guest wrote: | Flashback to 1994....
Well, now back to the present, 1/2007. My boy is 11 1/2 years old now. He walked at 7 or 8 months old. He never went to kindergarten but I was told by his school that they had never seen a child more ready for the first grade back then. He is now in the 6th grade and taking 8th grade pre-algebra. He is classified as "gifted," and last year he won seven or eight awards at school. He rarely gets sick, and when he does it is viral not bacterial.
I am curious as to whether or not others have had this same type of outcome as far as an elevated intelligence level and/or a better than average immunity system?? Coincidence?
In any case, I hope my experience, though not scientific proof of anything, may give some of you a little extra reassurance or perhaps a sigh of optimistic relief... |
Just a quick reply. My daughter, now 12 1/2, had a CPC that was the size of one hemisphere of her brain. She did not appear to have any other visual problems on the ultrasounds. The CPC was very obvious even to us. My Doctor pulled out one of her textbooks and showed us pictures of a baby terribly handicapped and told us this was a possibility for us and to think about what we were going to do. Of course, we said we couldn't wait to hold our precious child. End of that conversation. We went every two weeks for an ultrasound until our baby was born. I have so may pictures of her developing that we were spoiled slightly seeing through such an intimate window into her world. I decided to post a reply to follow up on several other posts that have a similar conclusion. My daughter has also been tested and considered gifted. She has a photographic memory, perfect pitch, very witty, and extemely loving. She wants to be a Vet. For several years in the beginning of her life we kept waiting for the other shoe to fall as it were. Thinking that some problem would manifest itself, watching carefully. In Kindergarten she could read chapter books and and her math skills were 2nd grade level. Her first grade teacher called us one day and said my daughter had been complaining about her hearing. We thought this must be it. I took her to a Doctor and had her hearing tested. They wanted to know why I brought her. Her hearing was off of the charts in the high and low tones. She was complaining because her hearing was so acute she could hear everything. We discovered at that time that she has perfect pitch. Her ability to sing on key and pick out the names of the notes of anything musical, any tone, is quite astounding. When she was four she kept tripping over her own feet, so of course we took her to a pediatric orthopedist. He indicated that she has hyper rotation in her hips and well the only problem he could find in that was she was going to be extemely fast. We were stunned. He told us most Olympic runners have the same quality and the only problem we were going to have was to try to catch her if she really took off. He was right. Her vision is above average, her hearing is above average, her sense of humor is very sophistocated and she is a kind person. Her CPC disappeared in my 7 1/2 month of pregancy. She had been measured in the ultrasound so many times they told us that she would be about 8 pounds and to prepare (I am very petite). She was 6 lbs. 2 oz. when she was born full term. They did so many tests on her, ultrasounds to see if her kidneys were formed and if her heart was normal and if she had all of her organs. A perfect little package.
I too think it would be beneficial to follow up with the children who were diagnosed with a CPC, that disappeared during pregancy, if there were things, good or bad, that manifested later. And if they have children will they have CPCs or pass on a trisomy problem. These are now my concerns. When the time is right we will tell her. Everyday I think about that we were offered to end her life. She just may be the one who finds the cure for cancer.
Good luck. Your babies will be special no matter the outcome. Hold them close, love and kiss them, everyday is precious. |
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| Posted: 09/24/08 - 10:28 Post subject: greater immunity???? |
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In response to "guest" posted 09/11/08 --
My son too had choroid plexus cysts which disappeared on their own around week 28. He is currently 2 years old, and so far he is developing faster than average on all fronts. He also has a strong immune system, had a fever twice for a few hours only, and has never taken antibiotics as of yet. Not sure if this is a coincidence. I thought I would mention it.
Thanks! |
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| Posted: 10/07/08 - 21:09 Post subject: unilateral choroid plexus cyst |
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| just a thought... have you had a lot of ultra sounds? i've had a lot of ultra sounds and i worried that this might have cause the unilateral choroid plexus cyst. please reply if you have. thanks |
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| Posted: 10/10/08 - 14:13 Post subject: Original Flashback poster here! |
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Hi, I am the "Guest" that originally posted the "Flashback" message about my son. I had lost this link until now, so thank you to those who responded.
In commenting to some of the responses, my son, J, with the resolved cysts has suspected that he has some form of ADHD, but I believe that he is just a procrastinator as I find that he does not fall into any of the classifications. I have a younger son who does, so I have researched this quite a bit.
My son, J, is now about 13 1/2. He is in 8th grade, took algebra last year, but has a geometry class that he takes at the high school, after which he is brought back to his junior high school by bus with one other girl. His math classes have been harder than his 15-year-old brother's math classes. J was elected president of the Junior Honor Society last week. He is not into sports as someone else had mentioned their child was, but he has just recently been playing some simple football games between friends. He had been taking violin but had to drop it to take the advanced class at the high school. He also took the regular SAT in January of this year and got 1500, which I think is about average for the regular people who take the test.
He is still quite healthy but has succumbed to either a cold or possible allergies this last week. It is always kind of surprising when he is a little off!
Anyway, now that I know where this site is I can check back here much more frequently and wish all the expectant mothers here the very best! |
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