Treatment center locations for POTS

sharecole@aol.com · Guest

My daughter-in-law has been diagnosed with POTS. However, her doctors seem to be at a loss as to how to proceed. We urgently need guidance. Thank you!

PattyAbby · Newbie Joined: 10 May 2007 Posts: 1

National Dysautonomia Research Foundation (NDRF)

http://www.ndrf.org/ The NDRF has doctors list, discussion forum, and general information.

http://www.nymc.edu/fhp/centers/syncope/POTS.htm - Center For Hypotension

http://www.nymc.edu/fhp/centers/syncope/index.htm - POTS information page (Center for Hypotension)

"The Postural Tachycardia Syndrome (POTS): Pathophysiology, Diagnosis & Management" - excellent article

"Acetylcholinesterase inhibition improves tachycardia in postural tachycardia syndrome" - new treatment option

Dr. Julian Stewart's recent study is on the Web - Autonomic Nervous System Dysfunction in Adolescents with Postural Orthostatic Tachycardia Syndrome and Chronic Fatigue Syndrome Is Characterized by Attenuated Vagal Baroreflex and Potentiated Sympathetic Vasomotion.

http://content.nejm.org/cgi/content/abstract/343/14/1008 The Neuropathic Postural Tachycardia Syndrome

http://content.nejm.org/cgi/content/abstract/343/12/847 Autoantibodies to Ganglionic Acetylcholine Receptors in Autoimmune Autonomic Neuropathies

http://www.mc.vanderbilt.edu/gcrc/adc/oi.html Vanderbilt University on orthostatic intolerance

http://home.bluecrab.org/~health/sickids.html For Parents of Sick and Worn-Out Children

http://content.nejm.org/cgi/content/abstract/342/8/541 Norepinephrine-Transporter Deficiency

Here is a Mind Experiment for Doctors to help them appreciate the severe difficulties patients with chronic orthostatic intolerance syndromes face every day. Suggestions for reform of the medical profession are also detailed.

Treatment center locations for POTS

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