Urethral Pain With No Infection

JPP413 · Newbie Joined: 27 Mar 2008 Posts: 1

In August i got a UTI and i went to the doctor and he gave me antibiotics well the uti went away but i have had a burning sensations since then. I have went to doctors i have even had surgery to get my bladder dialated. NOTHING HADS WORKED. My doctor thinks it may be Interstial Cystitis? I looked it up online and it does sound like that maybe could be it but it doesn't say anything about me having constant burning. I feel like it is ruining my life. Sex is not enjoyable anymore because it hurts now. Can someone help me please?

EMlooking4answers · Newbie Joined: 29 Apr 2008 Posts: 2

I have been having similar problems. I had UTI in February and it took about two months for it to go away. But even though the infection had cleared up I still had burning pain, mainly after I urinated. This pain was different from the UTI pain: it would go away at times, and there was no real frequency to urinate or pressure in my abdomen. The doctors tested me for UTIs, STDs, and yeast infections, and all results came back negative. The pain was still there. My doctor gave me a prescription for hyoscyamine, which is an anti-spasm medication. It seemed to help tremendously, but it is really just a band aid, just covering up the real problem. Supposedly irritation in the urethra/bladder causes it to spasm, which causes pain. I don't know what is causing the spasms, but I went to the urologist, and she said it may be that because the UTI took so long to heal, there is left over irritation from the infection. And acidic foods and drinks can make this more painful. I cut out the coffee and tea that I drink everyday, and the cranberry juice that I drank to get rid of the UTI, and this seemed to make a difference in the pain. I am going to try this diet and keep taking the hyoscyamine for a few more weeks to see if the pain goes away on its own. If it doesn't, there may be a more serious problem like a urethral stricture. The pain is definitely limited to the urethra, and it is ruining my sex life. It hurts to have sex, the pressure on the urethra is just too painful. I would suggest looking into this medication and cutting out acidic drinks for now, and I will post again in a few weeks if the pain has gone away or if the problem is something else. Good luck.

judybrooks · Newbie Joined: 04 Jun 2008 Posts: 1

I have had a lot of bladder infections. But recently have had pain but no infection. My urine has been clear on the last two visits. The pain is like a spasm which comes after I urinate and it refers to my right shoulder. I have never heard of this except when I had gall bladder problems and that pain also referred to my shoulder. I do think the description of it being like an orgasm which won't come and which hurts instead is a very good description. I have been unable to orgasm for quiite some time and wonder if there is some connection. I am not comfortable with intercourse.

K.V · Newbie Joined: 17 Jun 2008 Posts: 1

Ok, so I'm SO glad that I found this thread because, although no one seems to know what this condition is, at least I now know that I'm not alone. I have had this exact same problem for 9 years!

No infection, no UTI, no burning when I pee, just a spasmodic pain in the urethra after I pee, not during. It takes about 30 minutes to an hour to subside and tends to die down a little if my bladder is full. It's most painful when my bladder is empty.

The pain tends to be more violent if I've gone to the toilet without really needing to.

When the pain started at 17 (I'm approaching 25 now) I found that excersise would bring it on aswell.

I had 30 doctor and hosipital visitis and several minor ops and exploritories...and nothing. All they found during the tests was that I had PCOS aswell which, from my extensive research appears to be completely unrelated to this chronic pain that is ruining my life.

I was put on Buscopan which is for IBS (which I don't have) but "releaves muscular spasms of the reproductive organs". This bought me a little relief for a few years until my body became immune to the drug. Then I was put on Colofac ( a huge dosage of Buscopan) and now that doesn't seem to be working for me either.

If and when I found out what this condition is, I promise to start a website/help group as it seems that this issue is very rare...as every Doctor and specialist I've seen are completely clueless to it.

Guest · Guest

I have the same problem (I am a man).

I cannot find any explanation, but during a recent visit to my Dr regarding the pain it was suggested I stop drinking caffeine.

He said that caffeine can cause muscle spasms and pain. It was a suggestion I find hard to follow (I love coffee & soda). Since my pain episodes are rare I just lay off the caffeine and drink more water when I have my spells.

Might be a suggestion for some to try for relief.

Guest · Guest

Same as a lot of you - the swelling, pain, sometimes infection - sometimes no infection but all the symptoms. I went through this for years from teenager to 30s. Finally after every test imagineable, one urologist did a cysto that he was able to watch on a video monitor as he did it and discovered i had polyps just in the area where the urethra attaches to the bladder - odd place & hard to pick up. What was happening was that any time it got irritated (stress, caffeine, anything acidic) the polyps would swell and start closing off the urethra which caused all the symptoms. they went in and biopsied/cauterized the polyps and i haven't had problems in about 7 years (until now - concerned they may be coming back) but that was 7 years without the constantly recurring pain and symptoms. see if your doc can do this; polyps were easily overlooked with just the eye cysto.

LV · Newbie Joined: 15 Jul 2008 Posts: 1

Hey,

This topic has been seriously helpful to give me something to go on. I had my first Bladder infection way back in April, then had kidney stones a month later (twice in a row) right after my period. For a good month and a half I relaxed and had no pain. I was worried it would start up again around my two kidney stone free periods, but it didn't.

Now, the last two months, I've had a mild 'pressure' and pain around my urethra. I had first thought it was my vagina, but after paying attention to where the pain was originating from, it seemed to come from there. I'm going to cut pop back out of my diet. I had been off of it for a good year, and only recently started drinking it (off and on) as of late.

I actually don't have a family doctor. The town I live in has many doctors, but all have four year waiting lists. So I have always been going to the walk in clinic and emergency room at the Hospital.. So I can't constantly make appointments.

I'm just starting secondary school for the first time after a four year absence from High School. I've lived in this town for a good eight years with no problems before in my health. So I don't know what's going on all of a sudden. I have no more stress in my life than before now that I think about it.

Any idea what it might be for me? I don't suffer severe pain, sex isn't really painful either actually. It's just a constant mild pressure and pain, which doesn't lessen or grow in severity when I urinate.

It does however, I seem to find it more...severe (though not too much) at night.

Any help is seriously appreciated. I'm not a fan of doctors, so I like having an idea of what to tell them to look for so I don't have to go back.

foxy1 · Newbie Joined: 20 Jul 2008 Posts: 1

hello
after 25 yrs of this awful life changing condition (since 15yrs old) and many many cysto-scopes, antibiotics, muscle relaxants and yes...anti depressants!!! i have had to find my own ways of coping.
Sadly i have given up on finding a complete cure, however i have become an expert on symptom control.
I find that certain things can trigger an attack; intercourse, alcohol (wine specifically), spicy food and yes....stress can bring on an attack quite quickly.

I can not live without my hot water bottle, absorbant sanitary protection and a regiem of analgesia ranging from anti immflamitories (NSAID'S), paracetamol and codiene based pain control.
In addition I found Ranitidine 150mg stat dose helps neutralise the urine so it doesn't burn so much. Buscopan 20mg taken for the first 24 hrs helps also.

I use the sanitary pads, not due to any incontinence, but purely so i do not have to keep getting up to the loo every 5 minuets only to pass a drop or two. By remianing still the nere receptors are not aggrivated so easily. Place a peice of tissue soaked in cold water just inside the vulva over the urehra and this helps stop the burning and the spasms. I then take my anti inflamitory and pain medicine along with muscle relaxant and acid reducing Ranitidine.

It is very important to remember to drink at least a pint of water every hour for the first 6 hrs and as much as you can after this time. I keep a huge bottle of water by my side.
The hot water bottle provides instant relief when placed on my tummy or between my legs.

Before taking any medicine it is paramount that you discuss with your doctor and make sure it is safe for you to take.

I hope this helps/. x

Urethral Pain With No Infection

LIFEFORM SOCIAL COMMUNITY NETWORK