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staceynp
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Joined: 03 Mar 2008
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 Posted: 03/03/08 - 21:05 Post subject: Re: Patience is the key with GBS |
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GUEST:
I found your post very uplifting. My dad is living this nightmare that is called GBS. He was admitted to the hospital 2/9/08, in the ICU 2/10, put on the vent 2/14, ET tube changed to a trach 2/21 (as well as a feeding tube placed). It has been an emotional roller coaster. He's completely paralyzed except for his head. And he's having issues w/ his eyes not closing, therefore becoming dry, irritated and infected. Like you, he has no idea what triggered this-- he didn't have the flu or other virus, no food poisoning, no immunizations, etc etc
I am trying to hard to get in touch w/ people who have suffered this horrible, horrible disorder.
Thanks so much,
Stacey
**edited by moderator** |
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godskidalways
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Joined: 02 Apr 2008
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| Posted: 04/02/08 - 05:08 Post subject: GBS |
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Sorry about your dad having this disease.I have had it over a year.Im lucky with parallysis in my feet numbness with excruciating pain.Weakness throughout my whole body.I got mine they say from getting a flu shot.It can take months to manifest itself.Another guess they have for people is asking if they ate chicken.If so it can be undercooked and cause this.But just a guess.I had a terrible flu ever with bone aches like nothing ever before and extreme back pain feet felt like in bucket of ice I believe prayers from others stopped its upward progress.The pain is always there remember to help those with this.No strength to cook or clean very weak. God Bless you all
tina godskidalways at yahoo dot com |
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Guest
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| Posted: 05/31/08 - 16:21 Post subject: guillian-barre syndrome in 1996 |
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| i got gbs. in feb. 1996, was in hospitals for 4 months, then i checked myself out, got alot better once home with my kids. i was paralysed form neck, down, on ventilator, lungs collapsed, heart stopped, in icu for 6 weeks, even got physically abused by 2 seperate nurses! can answer many questions if you like! |
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