Posted: 02/26/08 - 19:09 Post subject: hereditary spherocytosis
Who is the oldest living person with hereditary spherocytosis?
What is the prognosis for a post-splenectomized HS patient (given the increased spherocyte fragility) ?
Is there a special diet for HS patients?
What are the prospects for a cure for HS?
Posted: 07/20/08 - 09:40 Post subject: Hereditary Spherocytosis and splenectomy
It is good to hear that someone lived so long. I am related to a family that has struggled with this disease for many generations. The oldest person there is 52. There are a few post splenectomy problems the most common one being gall stones and weight gain. Gout is another big problem since the spleen is what helps remove uric acid and is now gone.
Heart problems are the biggest killer which is standard for all anemia disorders. There is a type of diet used for this disorder. Most common in Europe. High in iron, calcium, and omega 3 oils and B12. Red meats, Fish, and citrus fruits are the best foods this includes tomatoes. Folic acid is very important to this disorder and comes from leafy vegitables and greens as well as nuts.
The average live span is 35-45 but this is improving all the time and a good diet and holding off on getting spleen out untill after puberty helps.
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Spleen gone since I was 5. I have no special diet or medication. 
