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lp shunt benign intercranial hypertension

The time now is 08/21/08 - 09:30
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PostPosted: 07/17/08 - 09:53    Post subject: 'Shelf life' of my shunt Vote now! Reply with quote

I was diognosed with B.I.H when I was 12 and had a shunt fitted when I was around 16 - one of the first to have a lumber shunt fitted I think. I have had no problems to date and I was formally discharged from hospital around 4 years ago and have not heard from them since. My shunt is now 7 years old and reading these posts has worried me! Should I go back and attempt to get the shunt examined to check for blockages etc? No one ever mentioned that it may have a 'shelf life' and need to be replaced when it was first fitted. What do you recommend? I am also worried about any potential impact on my sight if I do not do this. I was lucky in that, eventhough my condition went undetected for a while, my sight was in no way damaged. Should I seek advice from an optician?

Emily
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PostPosted: 07/18/08 - 13:52    Post subject: My Daughter's Experience Vote now! Reply with quote

Hello - My 25 year old daughter just had her LP shunt inserted a few days ago. Her recovery is not going that well. Today she has severe pain in her head when she stands up...that's one of the signs that too much fluid is being drained through her shunt. She was first diagnoised with psuedotumor cerebri four years ago. Her pressure would build up so rapidly that she would often have seizures. The past two months have been extremely rough - four lp's and 3 hospitilizations. We finally decided on the shunt. Now, it appears like something else is going wrong. The thing with my daughter though is that if something can go wrong, it usually does with her. I'm sure that after her pressures are leveled off, then she will lead a much better more comfortable life.
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