|
Did you find posts in this topic useful?
|
 
|
|
|
|
|
| Author |
Message |
texgranny
Newbie
Joined: 02 May 2008
Posts: 65
Report abuse
|
 Posted: 06/02/08 - 12:59 Post subject: Re: after effects from parathyroid surgery |
  |
|
| Guest wrote: | | I have been back and forth on whether to get the surgery. My PTH was 172 and calcium 10.8 at the last test. When I saw that people are commenting that they have difficulty concentrating after the surgery it fits with what I have seen with people I know who had the surgery. One had minimally invasive surgery-with a 8 inch incision! Since then this person seems so out of it and hard to have a conversation with-can't focus but does not realize it and appears to have little energy-a big difference from before the surgery. I don't think the doctors know everything about what the glands do and taking them out seems like they are trying for a quick fix to a complicated problem. I have not heard from anyone who really feels better after the surgery and most people I have heard from or about don't seem to have any better quality of life and seems like their health continues downhill. Since I don't really feel bad now other than tired I don't want to do it. |
Guest: I so hope all the posts here have not led you astray. With your labs you have Hyperparathyroidsim and need surgery. We all were and are looking for a miracle cure. My Dr only gave me 80% that all my symptoms would go away. As sick as I had been for years that was pretty good odds for me. I so TOTALLY believe that if I had gotten a diagnosis earlier my recovery would have been better. I still would have surgery with the same surgeon and go to the expense of travel etc. This disease NEVER gets better and will only rob you of a good quality life. My life after surgery is better . Am I where I want to be? NO. I believe with all my heart I had this disease 10 years or more. Find a good surgeon. 8 in. incision..YIKES..mine was so small. 10 weeks tomorrow since surgery and you can barely see my scar. Good luck to you on your decision, as you are the only one to decide. Depression is a symptom of this disease and it hinders our well being. Keep us posted...Best regards...TXG |
|
|
Back to top
|
|
Did you find this post useful?
|
|
|
|
|
|
|
 |
Guest
Guest
Report abuse
|
| Posted: 06/23/08 - 19:12 Post subject: hyperparathyroidism |
|
|
I have hyperparathyroidism and have told my Dr. I will not have surgery
as I am always trying to find non-surgical remedies for cures of diseases
I have done months of research-there is a prescription drug for this, plus
lowering calcium is possible with lasix, drinking LOTS of water;
I don't have my papers of research in front of me, but there are new,
non-invasive procedures that have worked, such as cryosurgery, rf ablation, but only go to highly expertise top-of-the-line hospitals such as
univ of pa. etc. I did a google research, which helped a lot.
Research-research-research. You may find the answer of what to do.
Try researching alternatives to surgery, etc.
Juli |
|
|
Back to top
|
|
Did you find this post useful?
|
|
|
|
|
|
|
|
texgranny
Newbie
Joined: 02 May 2008
Posts: 65
Report abuse
|
| Posted: 06/26/08 - 10:32 Post subject: Re: hyperparathyroidism |
|
|
| Guest wrote: | I have hyperparathyroidism and have told my Dr. I will not have surgery
as I am always trying to find non-surgical remedies for cures of diseases
I have done months of research-there is a prescription drug for this, plus
lowering calcium is possible with lasix, drinking LOTS of water;
I don't have my papers of research in front of me, but there are new,
non-invasive procedures that have worked, such as cryosurgery, rf ablation, but only go to highly expertise top-of-the-line hospitals such as
univ of pa. etc. I did a google research, which helped a lot.
Research-research-research. You may find the answer of what to do.
Try researching alternatives to surgery, etc.
Juli |
Good luck to you. Keep us posted. This disease can control your life if you let it. Txgranny |
|
|
Back to top
|
|
Did you find this post useful?
|
|
|
|
|
|
|
|
labyrinth
Newbie
Joined: 28 Jun 2008
Posts: 2
Report abuse
|
| Posted: 06/28/08 - 20:50 Post subject: rangerwric |
|
|
I had a parathoridectomy in January 2008 after a long period of problems and problems getting a correct diagnosis or surgery. I had one adenoma removed that was benign. I noticed immediate improvements in cognitive functioning that continues to improve. However, I feel like I have the flu with such pain that I often wonder if it is worth living with such pain. I gave up on doctors when I had such a problem getting a correct diagnosis and getting a surgeon to take me seriously. The pain is like having the flu--my whole body hurts to the point that it feels numb and the pain keeps me up or wakes me up at night. Half of the time, tramadol is effective in controlling the pain. However, tramadol does not help at night when I sleep. I have known I was not crazy but have also known that most doctors will tell you you have a psychiatric problem if they cannot figure out what is wrong with you. I have very little faith in the medical profession's ability to think outside the box.
It has been almost 7 months since my parthyroidectomy, and I think I am about 80% disabled from being able to work or do daily activities without pain pills that work only half of the time.
I was gratified to find this discussion to see that I was not alone in this experience.
9 |
|
|
Back to top
|
|
Did you find this post useful?
|
|
|
|
|
|
|
|
texgranny
Newbie
Joined: 02 May 2008
Posts: 65
Report abuse
|
| Posted: 06/29/08 - 22:01 Post subject: Re: rangerwric |
|
|
| labyrinth wrote: | I had a parathoridectomy in January 2008 after a long period of problems and problems getting a correct diagnosis or surgery. I had one adenoma removed that was benign. I noticed immediate improvements in cognitive functioning that continues to improve. However, I feel like I have the flu with such pain that I often wonder if it is worth living with such pain. I gave up on doctors when I had such a problem getting a correct diagnosis and getting a surgeon to take me seriously. The pain is like having the flu--my whole body hurts to the point that it feels numb and the pain keeps me up or wakes me up at night. Half of the time, tramadol is effective in controlling the pain. However, tramadol does not help at night when I sleep. I have known I was not crazy but have also known that most doctors will tell you you have a psychiatric problem if they cannot figure out what is wrong with you. I have very little faith in the medical profession's ability to think outside the box.
It has been almost 7 months since my parthyroidectomy, and I think I am about 80% disabled from being able to work or do daily activities without pain pills that work only half of the time.
I was gratified to find this discussion to see that I was not alone in this experience.
9 |
Have you had lab work done lately? what was your calcium and pth levels?
Are you taking calcium supplements and multiviamin? I am so sorry to hear of all your pain. That is the kind of pain I had before surgery. I am three months post surgery. It is very hard to get a doctor to take this disease seriously. They all think we are nut cases...lol..have you spoken with your surgeon? please don't give up there is a doctor out there for you. do you mind posting what state you live in if you are in the US. |
|
|
Back to top
|
|
Did you find this post useful?
|
|
|
|
|
|
|
|
Guest
Guest
Report abuse
|
| Posted: 07/02/08 - 20:52 Post subject: achy |
|
|
| I had an adenoma removed in April of 2007. My muscles still ache, and my bones actually hurt, i.e., if I get on my knees, my bones hurt. When I wake up in the morning, I'm stiff. This has all happend post surgery, before surgery, the symptoms were really bad, but different than this. I have been deficient in Vitamin D, but other than that, blood levels of everything is normal. I'm thinking that having this disease has done permanent damage to my muscles and bones. I continue to work out at the gym, work through the pain, but not a day goes by that I do not hurt. Docs say is should not be this way, but, it is. I was glad to read these posts because I thought I was the only one who felt like this. Thank you! |
|
|
Back to top
|
|
Did you find this post useful?
|
|
|
|
|
|
|
|
Guest
Guest
Report abuse
|
| Posted: 07/06/08 - 17:32 Post subject: Re: rangerwric |
|
|
| texgranny wrote: | | labyrinth wrote: | I had a parathoridectomy in January 2008 after a long period of problems and problems getting a correct diagnosis or surgery. I had one adenoma removed that was benign. I noticed immediate improvements in cognitive functioning that continues to improve. However, I feel like I have the flu with such pain that I often wonder if it is worth living with such pain. I gave up on doctors when I had such a problem getting a correct diagnosis and getting a surgeon to take me seriously. The pain is like having the flu--my whole body hurts to the point that it feels numb and the pain keeps me up or wakes me up at night. Half of the time, tramadol is effective in controlling the pain. However, tramadol does not help at night when I sleep. I have known I was not crazy but have also known that most doctors will tell you you have a psychiatric problem if they cannot figure out what is wrong with you. I have very little faith in the medical profession's ability to think outside the box.
It has been almost 7 months since my parthyroidectomy, and I think I am about 80% disabled from being able to work or do daily activities without pain pills that work only half of the time.
I was gratified to find this discussion to see that I was not alone in this experience.
9 |
Have you had lab work done lately? what was your calcium and pth levels?
Are you taking calcium supplements and multiviamin? I am so sorry to hear of all your pain. That is the kind of pain I had before surgery. I am three months post surgery. It is very hard to get a doctor to take this disease seriously. They all think we are nut cases...lol..have you spoken with your surgeon? please don't give up there is a doctor out there for you. do you mind posting what state you live in if you are in the US. |
You really need to get both ionized and serum calcium checked! as well as recheck pth. I'm 9 months post surgery and it's finally coming. Right now I'll feel really good then have a set back for 3 days or so. Also make sure you're taking a calcium sup. I take 1 every 12 hrs faithfully. Hang tough!!!!!! |
|
|
Back to top
|
|
Did you find this post useful?
|
|
|
|
|
|
|
|
texgranny
Newbie
Joined: 02 May 2008
Posts: 65
Report abuse
|
| Posted: 07/08/08 - 19:10 Post subject: parathyroidectomy side effects |
|
|
| I am three months post surgery and my labs are still crazy. Calcium 10.7 and PTH 5 (yes I said 5) I had hyperplasia and have one gland remaining. I am not sure what to do. I have decided I may always have high calcium. Even though Drs say it is never "normal" to have high calcium. Guess I am not normal. Feel pretty good and getting stronger and I don't want to dwell on the negative. I am just curious and would like to hear from anyone that had hyperplasia and how they are doing. Thanks..txg |
|
|
Back to top
|
|
Did you find this post useful?
|
|
|
|
|
|
|
|
hazey
Newbie
Joined: 05 Jul 2008
Posts: 8
Report abuse
|
| Posted: 07/12/08 - 13:50 Post subject: Parathyroidectomy side effects |
|
|
Love this site, and it's educational benefits.. HOWEVER,, from all I have read, if you need the surgery for hyperparathyroidism, then it is best to go ahaead and do i ASAP...However, the range of people's negative post surgical symptoms makes me bery nerveous........Do MOST people feel and do better after surgery,, OR is it equally divided?
Not anxious to have procedure where I might feel works aftarwards.
thanks<  |
|
|
Back to top
|
|
Did you find this post useful?
|
|
|
|
|
|
|
|
texgranny
Newbie
Joined: 02 May 2008
Posts: 65
Report abuse
|
| Posted: 07/12/08 - 14:21 Post subject: Re: Parathyroidectomy side effects |
|
|
| hazey wrote: | Love this site, and it's educational benefits.. HOWEVER,, from all I have read, if you need the surgery for hyperparathyroidism, then it is best to go ahaead and do i ASAP...However, the range of people's negative post surgical symptoms makes me bery nerveous........Do MOST people feel and do better after surgery,, OR is it equally divided?
Not anxious to have procedure where I might feel works aftarwards.
thanks< |
Hi, you know it may be divided. My experience has been mixed. I had been so sick for so very long anything would have been an improvement. My Drs told me all my symptoms probably wouldn't go away, but I took the chance anyway. The bone pain is gone and my energy level is better and I surely feel better than I did year ago or even three months ago. My case was rare from the beginning and I ended up with hyperplasia and they removed three glands. My biggest regret is that my pcp didn't follow up on all the years I had high calcium. I had to seek my own Dr. I wasted some good years. I really believe most people feel better after surgery. You must choose your surgeon wisely. I had no problems with surgical procedure itself and the very next day my bone pain was gone. I had a little sore throat and some swelling. I did not know I had hyperplasia before surgery as my scan was negative, That was my first scan. I hate to keep going on and on, but I am sure by now you know hyperparathyroidism is very complicated. I went to Tampa because of the MIRP procedure. I have stated many times on here I would do it over again in a heartbeat. My calcium levels are not as good as we would like, but I hope that will improve in time. If you decide on surgery, please keep us posted and I will be more than happy to answer any questions. Please stay positive.
Best regards, Texgranny |
|
|
Back to top
|
|
Did you find this post useful?
|
|
|
|
|
|
|
|
|
