parathyroidectomy side effects

WANTING TO HEAL · Newbie Joined: 01 Mar 2008 Posts: 10

ON ANOTHER WEBSITE I READ: DON'T BE TEMPTED TO ASK YOUR DOCTOR TOO MUCH TOO SOON BECAUSE AFTER THE SURGERY HIGH CALCIUM AND PARATHYROID HORMONE HAVE COMPROMISED THE FUNCTION OF MANY DIFFERENT SYSTEMS AND TISSUES IN THE BODY. IN SOME EXPERIENCES SOME SYMPTOMS RESOLVED WITHIN MONTHS, OTHERS, SUCH AS NEUROMUSCULAR WEAKNESS, FLEXOR TENOSYNOVITIS IN THE HANDS, AND OTHER RESULTANT JOINT PROBLEMS, TOOK SEVERAL YEARS. IN THE EARLY DAYS YOUR BRAIN MAY STILL BE COMPROMISED. AFTER A SUCCESSFUL PTX, BLOOD CALCIUM AND PTH RETURN TO NORMAL, BUT IT TAKES FAR LONGER FOR THE REST OF THE BODY TO REPAIR THE DAMAGE CAUSED BY POSSIBLY YEARS OF EXPOSURE TO ABNORMAL LEVELS OF THESE 2 SUBSTANCES. THEREIN MAY LIE THE ANSWER TO THE VARIABILITY OF RECOVERY...WHO KNOWS HOW LONG THE DISEASE HAS BEEN PRESENT.

ggo · Newbie Joined: 20 Apr 2008 Posts: 1

I had my surgery in Tampa by dr. Norman in November. He said I probably had hyperparithroidism for the last ten years. It really took a toll on my body. The last two years were the worst. My symptoms were brain fog, bad bone pain and weight loss. Well, after the surgery, my brain fog is better, but I am still losing weight. My bone pain is still here, worse than ever. I am not able to work and at age 58, looking at disibility. I am on pain meds everyday now. They say that after one has surgery, they get beter. Well I am still waiting for a full recovery. Dr says it could take up to 3 years.
ggo Crying or Very sad

WANTING TO HEAL · Newbie Joined: 01 Mar 2008 Posts: 10

I HAVE NO SYMPTOMS OF HYPERPARATHOIDISM, BUT MY ENDOCRINOLOGIST DID A SESTAMIBI SCAN AND FOUND A PARATHYROID ADENOMA...MY BLOOD PRESSURE IS NORMAL...I HAVE NO BONE OR JOINT PAIN...SOMETIMES I FEEL LIKE I MIGHT BE GETTING A KIDNEY STONE...I HAVE NO HEADACHES, I'M NOT TIRED...MY MEMORY IS BETTER THAN IT'S EVER BEEN...

BUT MY TSH IS SLIGHTLY ELEVATED, MY CALCIUM IS ELEVATED, MY PTH IS ELEVATED....

SHOULD I JUST HAVE LABS EVERY 6 MONTHS TO MONITOR MY SITUATION? THANKS - WANTING TO HEAL

Leida · Newbie Joined: 22 Mar 2008 Posts: 14

Hyperparathyroidism gets worse. It doesn't get better. Two prognosticators for a good recovery are low adenoma weight (a small tumour), and normal blood pressure.

I don't mean to scare you, but if you're hyperpara your blood pressure could go up at any time - and that often can't be resolved by surgery. You're also losing calcium out of your bones whether you feel it or not, risking heart disease, kidney stones, and possibly even stroke if your calcium goes really high.

IOW, it's a serious illness, and it will not go away or get better unless you have the tumour taken out. It may or may not take you a long time to recover, but if you don't have it taken care of it will get worse.

It sucks, I know. But I'm younger than you and I got osteoporosis, left ventricular hypertrophy, and salivary gland stones from it, amongst other things - it's very likely it caused/contributed to my diabetes.

I'm not 100% yet, though I have had some improvements over the past six weeks since my surgery - though it will probably be a long time to get completely well - and I was one of the lucky ones despite being symptomatic - small tumour and low blood pressure.

Talk it over with a good surgeon - there are quite a few in the States who deal with this. For your own sake - you're the only one who can make the decision.

WANTING TO HEAL · Newbie Joined: 01 Mar 2008 Posts: 10

THANKS FOR YOUR RESPONSE...I AM GETTING ANOTHER 24 HOUR CALCIUM URINE, PHOSPHATE, CMP, VITAMIN D 25-DIHYDROXY AND PTH INTACT...IF THESE ARE STILL HIGH, I WILL GO AHEAD WITH THE SURGERY...

Kodger99 · Newbie Joined: 01 May 2008 Posts: 13

Dr. Norman also did my surgery in October 2007. He pulled out a double adenoma. I was really sick....neuromuscular weakness (felt like rubbery legs when I moved around), fatigue, muscle aches and pains. Weeks after the surgery I was doing pretty good. Not 100% but maybe 80%. This lasted 6 months. The last ten days, the neuromuscular weakness has been plaguing me badly. ........so, it seems from what I'm reading, not all people have such a great recovery as is posted on Dr. Norman's website. Those people must be the lucky ones.
I too am waiting to heal! Anyone else out there waiting to heal???

texgranny · Newbie Joined: 02 May 2008 Posts: 13

I had surgery on 03/25/08 in Florida. I felt good for the first few weeks and now i have no energy. i had hyperplasia with three tumors removed and one thyroid nodule. I had lab work done this week and hope to get good results. I think I had the disease for at least 10 years and I guess my question is am I expecting too much too soon. The nurse says give myself three months. You read all the wonderful stories on the web site of total recovery and I want mine too...lol..I am taking calcium and mutiple vitamin daily. Any ideas would be greatly appreciated. Thanks

texgranny · Newbie Joined: 02 May 2008 Posts: 13

texgranny · Newbie Joined: 02 May 2008 Posts: 13

Kodger99 · Newbie Joined: 01 May 2008 Posts: 13

My surgery was a double adenoma. Dr. Norman said the remaining 2 glands were ok. Although, a month later I recieved the pathologist report that said a 3rd gland was "slightly enlarged". Now I'm wondering about this. What should I be taking as far as calcium mg per day? What about magnesium? Any other supplements?

parathyroidectomy side effects

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