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Kodger99
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Joined: 01 May 2008
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 Posted: 05/02/08 - 18:38 Post subject: Re: post Parathyroid surgery |
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| texgranny wrote: | | Kodger99 wrote: | Dr. Norman also did my surgery in October 2007. He pulled out a double adenoma. I was really sick....neuromuscular weakness (felt like rubbery legs when I moved around), fatigue, muscle aches and pains. Weeks after the surgery I was doing pretty good. Not 100% but maybe 80%. This lasted 6 months. The last ten days, the neuromuscular weakness has been plaguing me badly. ........so, it seems from what I'm reading, not all people have such a great recovery as is posted on Dr. Norman's website. Those people must be the lucky ones.
I too am waiting to heal! Anyone else out there waiting to heal??? |
How are you feeling now? |
No where near good! |
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Kodger99
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Joined: 01 May 2008
Posts: 13
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| Posted: 05/02/08 - 18:40 Post subject: Re: post Parathyroid surgery |
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[quote="Kodger99"] | texgranny wrote: | | Kodger99 wrote: | Dr. Norman also did my surgery in October 2007. He pulled out a double adenoma. I was really sick....neuromuscular weakness (felt like rubbery legs when I moved around), fatigue, muscle aches and pains. Weeks after the surgery I was doing pretty good. Not 100% but maybe 80%. This lasted 6 months. The last ten days, the neuromuscular weakness has been plaguing me badly. ........so, it seems from what I'm reading, not all people have such a great recovery as is posted on Dr. Norman's website. Those people must be the lucky ones.
I too am waiting to heal! Anyone else out there waiting to heal??? |
How are you feeling now? |
No where near good![ It's been 2 weeks now that I feel crappy - weekness, poor muscular endurance. Why was I better then this for the first 6 months after surgery?
How are things with you lately? |
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texgranny
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Joined: 02 May 2008
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| Posted: 05/02/08 - 20:15 Post subject: Re: post Parathyroid surgery |
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[quote="Kodger99"] | Kodger99 wrote: | | texgranny wrote: | | Kodger99 wrote: | Dr. Norman also did my surgery in October 2007. He pulled out a double adenoma. I was really sick....neuromuscular weakness (felt like rubbery legs when I moved around), fatigue, muscle aches and pains. Weeks after the surgery I was doing pretty good. Not 100% but maybe 80%. This lasted 6 months. The last ten days, the neuromuscular weakness has been plaguing me badly. ........so, it seems from what I'm reading, not all people have such a great recovery as is posted on Dr. Norman's website. Those people must be the lucky ones.
I too am waiting to heal! Anyone else out there waiting to heal??? |
How are you feeling now? |
No where near good![ It's been 2 weeks now that I feel crappy - weekness, poor muscular endurance. Why was I better then this for the first 6 months after surgery?
How are things with you lately? |
Hi, I have good days and bad days, but not as bad before surgery. I have no bone pain, but my energy level is still low. Almost six weeks.
I take 2 Citracal with vitamin D daily and mutiple vitamin. I am going to change my vitamins next week to see if that helps. I just had labs this week and don't know the results yet, but I so hope calcium is normal. I was a rare case as i never had a high PTH level. My pre-op PTH was 16 and my calcium was 11.5. When they told me hyperplasia I was so shocked. I am 62 and I wasted so many years thinking I would get better. Have you seen a endocrinologist with these new symptoms? I hope yours is better than mine. Please keep me posted on your condition. |
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texgranny
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Joined: 02 May 2008
Posts: 12
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| Posted: 05/02/08 - 20:29 Post subject: Re: Parathyroid surgery |
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| Kodger99 wrote: | | My surgery was a double adenoma. Dr. Norman said the remaining 2 glands were ok. Although, a month later I recieved the pathologist report that said a 3rd gland was "slightly enlarged". Now I'm wondering about this. What should I be taking as far as calcium mg per day? What about magnesium? Any other supplements? |
When is the last time you had lab work done? I don't understand the path report. Did you contact the dr's office about this? I would. My calcium is 400 IU of VIT D and 630mg of calcium. I am sure you should be taking some calcium. I don't know about magnesium. |
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Kodger99
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Posts: 13
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| Posted: 05/03/08 - 07:52 Post subject: Re: post Parathyroid surgery |
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[quote="texgranny"] | Kodger99 wrote: | | Kodger99 wrote: | | texgranny wrote: | | Kodger99 wrote: | Dr. Norman also did my surgery in October 2007. He pulled out a double adenoma. I was really sick....neuromuscular weakness (felt like rubbery legs when I moved around), fatigue, muscle aches and pains. Weeks after the surgery I was doing pretty good. Not 100% but maybe 80%. This lasted 6 months. The last ten days, the neuromuscular weakness has been plaguing me badly. ........so, it seems from what I'm reading, not all people have such a great recovery as is posted on Dr. Norman's website. Those people must be the lucky ones.
I too am waiting to heal! Anyone else out there waiting to heal??? |
How are you feeling now? |
No where near good![ It's been 2 weeks now that I feel crappy - weekness, poor muscular endurance. Why was I better then this for the first 6 months after surgery?
How are things with you lately? |
Hi, I have good days and bad days, but not as bad before surgery. I have no bone pain, but my energy level is still low. Almost six weeks.
I take 2 Citracal with vitamin D daily and mutiple vitamin. I am going to change my vitamins next week to see if that helps. I just had labs this week and don't know the results yet, but I so hope calcium is normal. I was a rare case as i never had a high PTH level. My pre-op PTH was 16 and my calcium was 11.5. When they told me hyperplasia I was so shocked. I am 62 and I wasted so many years thinking I would get better. Have you seen a endocrinologist with these new symptoms? I hope yours is better than mine. Please keep me posted on your condition. |
I'm also a rare case...my serum calcium was at the high end of normal, never elevated. It was my ionized calcium that was high with a PTH anywhere from 49 to 70. These numbers didn't convince any endochronolologist that it was hyperparathyroidism. Dr. Norman made the diagnosis. Low and behold....this was a double adenoma.
I too had labs this week. I'll keep you posted. Please do the same for me. |
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Kodger99
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Joined: 01 May 2008
Posts: 13
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| Posted: 05/03/08 - 08:34 Post subject: Re: post Parathyroid surgery |
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[quote="texgranny"] | Kodger99 wrote: | | Kodger99 wrote: | | texgranny wrote: | | Kodger99 wrote: | Dr. Norman also did my surgery in October 2007. He pulled out a double adenoma. I was really sick....neuromuscular weakness (felt like rubbery legs when I moved around), fatigue, muscle aches and pains. Weeks after the surgery I was doing pretty good. Not 100% but maybe 80%. This lasted 6 months. The last ten days, the neuromuscular weakness has been plaguing me badly. ........so, it seems from what I'm reading, not all people have such a great recovery as is posted on Dr. Norman's website. Those people must be the lucky ones.
I too am waiting to heal! Anyone else out there waiting to heal??? |
How are you feeling now? |
No where near good![ It's been 2 weeks now that I feel crappy - weekness, poor muscular endurance. Why was I better then this for the first 6 months after surgery?
How are things with you lately? |
Hi, I have good days and bad days, but not as bad before surgery. I have no bone pain, but my energy level is still low. Almost six weeks.
I take 2 Citracal with vitamin D daily and mutiple vitamin. I am going to change my vitamins next week to see if that helps. I just had labs this week and don't know the results yet, but I so hope calcium is normal. I was a rare case as i never had a high PTH level. My pre-op PTH was 16 and my calcium was 11.5. When they told me hyperplasia I was so shocked. I am 62 and I wasted so many years thinking I would get better. Have you seen a endocrinologist with these new symptoms? I hope yours is better than mine. Please keep me posted on your condition. |
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Kodger99
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Joined: 01 May 2008
Posts: 13
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| Posted: 05/03/08 - 08:43 Post subject: Re: post Parathyroid surgery |
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[quote="Kodger99"] | texgranny wrote: | | Kodger99 wrote: | | Kodger99 wrote: | | texgranny wrote: | | Kodger99 wrote: | Dr. Norman also did my surgery in October 2007. He pulled out a double adenoma. I was really sick....neuromuscular weakness (felt like rubbery legs when I moved around), fatigue, muscle aches and pains. Weeks after the surgery I was doing pretty good. Not 100% but maybe 80%. This lasted 6 months. The last ten days, the neuromuscular weakness has been plaguing me badly. ........so, it seems from what I'm reading, not all people have such a great recovery as is posted on Dr. Norman's website. Those people must be the lucky ones.
I too am waiting to heal! Anyone else out there waiting to heal??? |
How are you feeling now? |
No where near good![ It's been 2 weeks now that I feel crappy - weekness, poor muscular endurance. Why was I better then this for the first 6 months after surgery?
How are things with you lately? |
Hi, I have good days and bad days, but not as bad before surgery. I have no bone pain, but my energy level is still low. Almost six weeks.
I take 2 Citracal with vitamin D daily and mutiple vitamin. I am going to change my vitamins next week to see if that helps. I just had labs this week and don't know the results yet, but I so hope calcium is normal. I was a rare case as i never had a high PTH level. My pre-op PTH was 16 and my calcium was 11.5. When they told me hyperplasia I was so shocked. I am 62 and I wasted so many years thinking I would get better. Have you seen a endocrinologist with these new symptoms? I hope yours is better than mine. Please keep me posted on your condition. |
I'm also a rare case...my serum calcium was at the high end of normal, never elevated. It was my ionized calcium that was high with a PTH anywhere from 49 to 70. These numbers didn't convince any endochronolologist that it was hyperparathyroidism. Dr. Norman made the diagnosis. Low and behold....this was a double adenoma.
I too had labs this week. I'll keep you posted.
My endocronologist is no good either...I'm actually seeing a GP who is more with it. He wasn't sure what to think about the pathologist report that came in though. I emailed Dr. Norman about it and he said my remaining 2 glands were perfect. So.....who's right? Pathology? Norman?Please keep in touch. |
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texgranny
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Joined: 02 May 2008
Posts: 12
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| Posted: 05/03/08 - 09:51 Post subject: Re: post Parathyroid surgery |
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[quote="Kodger99"] | Kodger99 wrote: | | texgranny wrote: | | Kodger99 wrote: | | Kodger99 wrote: | | texgranny wrote: | | Kodger99 wrote: | Dr. Norman also did my surgery in October 2007. He pulled out a double adenoma. I was really sick....neuromuscular weakness (felt like rubbery legs when I moved around), fatigue, muscle aches and pains. Weeks after the surgery I was doing pretty good. Not 100% but maybe 80%. This lasted 6 months. The last ten days, the neuromuscular weakness has been plaguing me badly. ........so, it seems from what I'm reading, not all people have such a great recovery as is posted on Dr. Norman's website. Those people must be the lucky ones.
I too am waiting to heal! Anyone else out there waiting to heal??? |
How are you feeling now? |
No where near good![ It's been 2 weeks now that I feel crappy - weekness, poor muscular endurance. Why was I better then this for the first 6 months after surgery?
How are things with you lately? |
Hi, I have good days and bad days, but not as bad before surgery. I have no bone pain, but my energy level is still low. Almost six weeks.
I take 2 Citracal with vitamin D daily and mutiple vitamin. I am going to change my vitamins next week to see if that helps. I just had labs this week and don't know the results yet, but I so hope calcium is normal. I was a rare case as i never had a high PTH level. My pre-op PTH was 16 and my calcium was 11.5. When they told me hyperplasia I was so shocked. I am 62 and I wasted so many years thinking I would get better. Have you seen a endocrinologist with these new symptoms? I hope yours is better than mine. Please keep me posted on your condition. |
I'm also a rare case...my serum calcium was at the high end of normal, never elevated. It was my ionized calcium that was high with a PTH anywhere from 49 to 70. These numbers didn't convince any endochronolologist that it was hyperparathyroidism. Dr. Norman made the diagnosis. Low and behold....this was a double adenoma.
I too had labs this week. I'll keep you posted.
My endocronologist is no good either...I'm actually seeing a GP who is more with it. He wasn't sure what to think about the pathologist report that came in though. I emailed Dr. Norman about it and he said my remaining 2 glands were perfect. So.....who's right? Pathology? Norman?Please keep in touch. |
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You know I would believe Dr Norman, because he checks the other glands during surgery. I just don't think he would skip over one. I wasn't sure if they sent the parathyroid tumors to path or not as my billing was just for my thyroid nodule he removed. It looks like you are a rare bird like me with normal PTH levels. I am interested in knowing your levels when you get reports back. Both calcium levels for me were high and higher before surgery. This is so nice to have someone to talk with regarding this disease as most people don't know about the disease or could care less...lol..keep your chin up better days ahead. |
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Kodger99
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Joined: 01 May 2008
Posts: 13
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| Posted: 05/03/08 - 11:22 Post subject: Re: post Parathyroid surgery |
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[quote="texgranny"] | Kodger99 wrote: | | Kodger99 wrote: | | texgranny wrote: | | Kodger99 wrote: | | Kodger99 wrote: | | texgranny wrote: | | Kodger99 wrote: | Dr. Norman also did my surgery in October 2007. He pulled out a double adenoma. I was really sick....neuromuscular weakness (felt like rubbery legs when I moved around), fatigue, muscle aches and pains. Weeks after the surgery I was doing pretty good. Not 100% but maybe 80%. This lasted 6 months. The last ten days, the neuromuscular weakness has been plaguing me badly. ........so, it seems from what I'm reading, not all people have such a great recovery as is posted on Dr. Norman's website. Those people must be the lucky ones.
I too am waiting to heal! Anyone else out there waiting to heal??? |
How are you feeling now? |
No where near good
