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Kodger99
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 Posted: 05/03/08 - 17:40 Post subject: |
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| texgranny wrote: | | You know I never ask about post surgery. I had read all the good reports people had posted on his web site. I was to take calcium and mutiple vitamins. I had my labs at 5 weeks as instructed and am still awaiting the results. If calcium is normal i guess I am cured. I sure hope so as i just have the one parathyroid gland left. They only gave me 80% that all my symptoms would go away. Considering the shape I had been in that sounded wonderful to me. I still have few aches and pain, but not the intense bone pain I had before surgery. I am concerned about your muscle weakness. Any chance you are on the med Lipitor or some drug like that. That is what happen to me when i took the drug. It was devastating. I thought I was going to die. I could not walk. depressed. I would certainly look at my meds. How high is your calcium? Was you calcium normal until recently? What does the GP say? |
No I'm not on Lipitor or any meds. It's a weakening muscle fatigue, where they seem to loose power- most notibly in my legs. It was by far my WORST symptom pre-surgery. It was really good for the longest time then, the last 2 weeks were bad again. Although, the last 2 days I seem to be gradually progressing again.
I'm taking your advice and started my Citracal again - 3 a day. Do you really think a multi-vitamin would be worth while too?
It will be 2-3 weeks before I get any labs back. My GP is waiting on these labs before giving me any guidance. |
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texgranny
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| Posted: 05/03/08 - 18:58 Post subject: |
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| Hi there, you know I wouldn't take three Citracal unless your doctor recommended it. Dr Norman told me to take two forever because of my osteoporosis and the daily multi vitamin. i have been taking Wal mart brand of vitamins and I am switching to Centrum silver this week. Like all things you get what you pay for...lol..Glad to hear you feeling somewhat better. Stay in touch. |
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texgranny
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| Posted: 05/06/08 - 13:02 Post subject: |
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| Well 6 weeks post op and my lab results are not good. Calcium high at 10.2 and my PTH 9. Low Vitamin D. Blood Pressure all over the place. Guess I am not cured. Bummer..I wish Dr Norman would include post op info on website. What to do now? |
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Leida
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| Posted: 05/06/08 - 16:12 Post subject: |
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Well, you are on calcium supplements, and 10.2 is lower than you were, yes? A PTH of 9 is low, too, assuming that yours was high to start with.
Somewhere on that site (though I can't find it now) it does say that it can take up to three months for your hormones to rebalance.
I don't think I'd panic yet (of course, if my bloodwork comes back like yours, I probably will so I do understand). But I think the PTH being low and the calcium being high-end of normal is probably better than it was - no? |
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texgranny
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| Posted: 05/06/08 - 17:09 Post subject: |
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| Leida wrote: | Well, you are on calcium supplements, and 10.2 is lower than you were, yes? A PTH of 9 is low, too, assuming that yours was high to start with.
Somewhere on that site (though I can't find it now) it does say that it can take up to three months for your hormones to rebalance.
I don't think I'd panic yet (of course, if my bloodwork comes back like yours, I probably will so I do understand). But I think the PTH being low and the calcium being high-end of normal is probably better than it was - no? |
You know I think I am on a pity party today..lol..pre surgery my calcium was 11.5 and PTH 16. I had hyperplasia and three tumors removed. I fall in that 2% of rare birds. I had read the website so much I guess I just had BIG expectations. At least there is no bone pain. thanks for your post. |
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Kodger99
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| Posted: 05/07/08 - 17:55 Post subject: blood work |
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Hello again.
Don't be discouraged, a low PTH indicates that you're headed in the right direction. What does your Doctor say? I would have to think that the 1000mg (is that right?) of calcium supplements daily, would have an effect on the numbers. How are you feeling? Keep in touch. |
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texgranny
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| Posted: 05/08/08 - 08:57 Post subject: Re: blood work |
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| Kodger99 wrote: | Hello again.
Don't be discouraged, a low PTH indicates that you're headed in the right direction. What does your Doctor say? I would have to think that the 1000mg (is that right?) of calcium supplements daily, would have an effect on the numbers. How are you feeling? Keep in touch. |
Yes I heard from Doctor's office today. They say I am headed in the right direction and my numbers mean the calcium pills I take daily are working. I do not need to take Vitamin D supplements. I haven't had a good week as my blood pressure is crazy. I have changed meds AGAIN.How are you this week? Is the muscle weakness better this week? Do you suffer from depression with this awful disease? Thanks for the post, let me know how you are. |
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Kodger99
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| Posted: 05/08/08 - 17:55 Post subject: Supplements |
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The last three days have been great. I take a Citracal at bed time, then again at 7:30 in the morning. This makes my mornings way better as this was the worst part of the day. I then started a multi-vitamin at noon which has 185 mg of calcium. This has made a world of diffference over the last 3 days. My remaining 2 glands must not be providing me with the necessary blood calcium.
Prior to these 3 days, I had dwindled my calcium supplements down to maybe one a day. Just talking with you pointed me in the right direction. Thanks for that! Let's hope I can keep it under control. |
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texgranny
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| Posted: 05/08/08 - 18:14 Post subject: Re: Supplements |
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| Kodger99 wrote: | The last three days have been great. I take a Citracal at bed time, then again at 7:30 in the morning. This makes my mornings way better as this was the worst part of the day. I then started a multi-vitamin at noon which has 185 mg of calcium. This has made a world of diffference over the last 3 days. My remaining 2 glands must not be providing me with the necessary blood calcium.
Prior to these 3 days, I had dwindled my calcium supplements down to maybe one a day. Just talking with you pointed me in the right direction. Thanks for that! Let's hope I can keep it under control. |
I am so HAPPY you are feeling better! Great news. Keep in touch. |
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texgranny
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| Posted: 05/12/08 - 10:18 Post subject: mouth ulcers after parathyroidectomy |
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| Just curious to know if anyone has had mouth ulcers since surgery. I am 7 weeks post op and this is my second round with them. L Lysine has worked for me before but unsure if I should take it with all the calcium I am taking. Anyone with this problem? If so what did you do? HELP |
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