pineal cyst

kellir · Newbie Joined: 10 Mar 2007 Posts: 2

I am a 35 year old woman who was diagnosed with a pineal cyst, 9 mm about 6 monhts ago. I have a follow up MRI next week to see if it has grown. I, as like everyone else, was told this is noway causing any of my symptoms. I find it odd that everyone who has a pineal cyst also has the same type of symtpoms. I have horrible daily headaces, my sleep patterns have changed dramatically, I have depression, and this has not resolved with 6 different anti-depressants that have been tried so far. I have horrible dizzy spells. I will just be sitting, looking at computer, or watching tv, and all the sudden i feel something in my head, (feels like something drops), and then i get real dizzy, unsteady, sometimes nausea. The original spell will last about 5 to 10 minutes, then go away, but I feel "off" for sometimes up to 2 hours after. This started over a year ago, but over the past months has gotten worse, to where it is a daily thing. So far, they don't seem to care (my drs.) or take this seriously. Now I have been diagnosed with PVCs. I have never had heart problems before. They assure me this has nothing to do with the cyst either. I often have right eye pain, it waters for no reason. It will get blurry vision, and wiggles back and forth. I seen an Eye doctor who did a peripheral vision test, which was okay, and a dilated eye exam and was told that was okay also. Yet it continues. I am tired all the time, and just getting very frustrated all of this this. Noone will listen to me. My last visit, I was telling them all these things that are going on, and they told me to see a shrink! I am so upset, the dizzy spells and the headaches scare me. Any advice on what I can do? I am not a complainer, and i have gone from a fun loving person, to a moody, grouchy, short tempered person. I have memory loss, which seems to be getting worse. Noone cares though. Noone will listen. I feel for all of you out there with a pineal cyst.

peterbajwa2006 · Newbie Joined: 06 May 2007 Posts: 1

tamilou1122 · Newbie Joined: 14 Aug 2007 Posts: 1

i also suffer from a pineal cyst.....it is 2cm by 2cm if u want to talk about it please contact me at tamilou1122@yahoo.com Very Happy

aprilshowers · Newbie Joined: 04 Sep 2007 Posts: 1

I am a 29 year old female. I have just found out I have a pineal cyst that is 9mm also. I had been having daily headaches. I have also had dizzy spells for years. I also complained a few months back to my dr about my moodiness. I seem to snap over everything anymore. She told me I was bi polar but I don't feel like that's the problem. I took the meds for it with no change whatsoever. I also have sleep apnea. It seems like no matter how much I sleep I don't feel rested. I have also had a few seziures from childhood on. If anybody else with the same problems wants to talk and keep in touch you can email me at aprilshowers_1978@yahoo.com.

angiesco · Newbie Joined: 06 Nov 2007 Posts: 3

I am in the same position as you all. I am 34 years old and after frequent and painful headaches, on my left side, I went to see a neurologist. There is a pineal cyst of 8-9mm, I was told that isn't causing my headaches. The diagnosis is migrane and now I have beta blockers and anti depressant tablets-which don't help at all. It can't be a coinsidence, can it? That we have the same symptoms? I am guessing that you are all in the States, I am a Scot, living in Turkey. so, it seems even here, the doctors opinions are the same. I am due to go back at the end of November-until then I am just taking the tablets.

Regards to you all and sorry I don't have any helpful answers.
Angie.

angiesco · Newbie Joined: 06 Nov 2007 Posts: 3

I am in the same boat as you all here. I am 34 years old and was having painful headaches on my left side. I went to a neurologist and had an MR scan which shows there is a cyst of 8-9mm. She told me this isn't the cause of my headaches. The diagnosis is migrane. So she perscribed beta blockers and anti depressants. They don't seem to be helping at all. I am also short tempered and feel like everything gets on my nerves! It does seem that we all have a pineal cyst and we all have the same symptoms. I am guessing that you are all in the States. I am a Scot who lives in Turkey. So it seems the doctors here are of the same opinion.

I am sorry I don't have any useful info or help but I just wanted to share that I am in the same postion as you all.

Regards Angie.

jessie_earl · Newbie Joined: 10 Dec 2007 Posts: 1

I am a nursing student working on my med/surg rotation at University of Colorado Hospital. I just wanted to tell you that I had a patient who just had a pineal cyst removed this week. She had chronic, horrible headaches that caused nausea and vomiting, and blurred vision in one eye. I just want to tell you that there is a Dr here that will work on it, and she says he is a wonderful Dr. His name skips my mind, but if you contact the hospital they will be able to help you. His last name is something like Galehie or something similar... "lilehie" or something...Good luck in your search for a cure.

Guest · Guest

I am a nursing student working on my med/surg rotation at University of Colorado Hospital. I just wanted to tell you that I had a patient who just had a pineal cyst removed this week. She had chronic, horrible headaches that caused nausea and vomiting, and blurred vision in one eye. I just want to tell you that there is a Dr here that will work on it, and she says he is a wonderful Dr. His name skips my mind, but if you contact the hospital they will be able to help you. His last name is something like Galehie or something similar... "lilehie" or something...Good luck in your search for a cure.

I forgot to add that she is also getting treated for depression and/or anxiety. I noticed that some of you have those symptoms as well. Good luck, I wish I could really remember the exact name of the Dr, but I'm sure they would be able to help. He with with neurology at the Univ.

Guest · Guest

I too have just been diagnosed with a 12mm pineal cyst and have exactly the same symptoms as you guys. They have slowly developed over the last 2 years and include strange dizziness, nausea, headaches, blurred vision and mild fevers/chills. My doctor won't say that it is 100% to do with the cyst and I feel helpless to do anything.

Has anyone found a doctor who will accept that Pineal Cysts can cause these distressing symptoms?

I live in the Midlands (UK).

Guest · Guest

memory loss, lack of balance, illegable hand writing, double vision and migraine were just some of the symptons of my pineal cyst but it was the docs who advised me that they were all caused by the cyst that was found following an mri. it took a really bad fall befor i was refered to a neurologist and the symptons had been building for best part of 2 years but gloucester royal refered me to frenchay and within weeks i underwent an operation to remove the cyst. i was home within 24 hrs and completely myself at once. it is the hydrocephelus that causes all the problems but once you know what it is then recieving treatment should be straight forward

pineal cyst

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