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Guest
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 Posted: 05/18/07 - 08:36 Post subject: tolosa hunt syndrome |
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 I am25 years old and recently diagnosed with tolosa hunt syndrome. I am in alot of pain and taking predisone. It doesnt seem to be working. I am experiencing double vision and blurred vision. I am scared I am going blind. Is there a cure for this? |
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| Posted: 09/14/07 - 01:20 Post subject: |
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| im a 36 old male also with toloso hunt syndrome i would ask your physician to get you off predisone, to many unnecessary side effects and look for other options, i've tried everything in the past from immatrix, to naproxen, to accupuncture, and i recently have been perscribed a medicine called topiramate and its workings wonders for me i haven't had a headache in months. its been a godsend for me. this is just a suggestion, but if it works why not give it a try, just ask and see what they suggest or recommend, from one sufferer whos been there to another hang in there. hey we should start a web site or a blog, cause from what i understand there not alot of us out there. |
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| Posted: 04/01/08 - 12:04 Post subject: tolosa hunt synddrome |
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| to the 25 yr old with tolosa hunt - have you recieved any relief and if so has it relapsed? Just might have some ideas from my own personal experiences with this same condition. posted 4-01-08 |
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skimon
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Joined: 03 Jun 2008
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| Posted: 06/03/08 - 10:44 Post subject: Re: tolosa hunt synddrome |
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In response to any of you who have been diagnosed with Tolosa Hunt. Any info you could provide as to how you are responding would be greatly appreciated. I was diagnosed on October 07. Have been on prednisone since. I have tapered down, but am still not able to get off with returning pain. Any of you have the same symptoms?
Thanks
Ski |
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