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topamax is not working for my daughters seizures

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PostPosted: 06/23/07 - 20:24    Post subject: topamax is not working for my daughters seizures Vote now! Reply with quote

hi. my name is stacey. my six month old daughter was diagnosed with tuberous sclerosis a month ago. the doctors say her case is pretty severe. they have her on three blood pressure meds and only one seizure one named topamax. she has 5.7ml twice a day. i need anyone s advice whether to change meds and what other medicines are good? all she does is have a seizure (sometimes clusters last almost 15 min) go to sleep and then when she wakes up she has another one. the doctors said after she woke up she should be over her seizure episode but it isnt. i am very new to knowledge about this disease. but something tells me its not ok. the doctors are acting like its no big deal because her seizures look mild but im her mother and i observe her all the time. she is only getting worse. i want to control her seizures because right now she has no brain damage. it seems to me that the doctors are waiting for her seizures to get bad enough to give her brain damage!! it is so frustrating!! help!! anyone with advice or knowledge of her disease please contact me at **edited by moderator ** e-mails not allowed **. thanks!
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