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Oh my God! Wow you are a trooper. I am so sorry you had to go through this and I hope you are doing well now??!
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Hi! I had chronic pancreatitis 3 weeks after my son was born. I was told that I probably would not live because I was only 21 years old when it happened. Gallstones got into the duct of my pancreas and that is the absolute worst pain I have ever had. No amount of pain meds they were giving me in the ER were not helping, when the tests all came back he told my husband that I needed to be in ICU because I had chronic pancreatitis and I had to be stabilized before they could even do any surgery. I don't remember alot about those first few months except my whole family, pastor praying for me. I ended up loosing my gallbladder, spleen, and 45 percent of my pancreas. I also have a seizure disorder now. I had 14 surgeries and was in the hospitals for a year. This happened 18 years ago and now I am having problems with my sugar (diabetes) I have to see a endocrinologist next month in the meantime I have to give myself shots of insulin until I see the endocrinologist. I have been on Creon since I left the hospital and I will be having a histerectomy soon. I would to have a group that I could conversate back and to with regarding our problems​ and knowing that there are other people out there that are going through what I have and still going through is helpful.
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Dear Eileen,
I really hope, that you will receive my message. I am from the Netherlands and had the same surgery as you on March 21. You write, that you have a full, good life. At this moment I wonder if it will ever be like that again for me. I have not much energy, lost 8 kgs and can hardly eat. Can you tell me, what kind of diet you had the first months after your surgery? Your message is very positive and gives me hope. Greetings from the Netherlands,
Marit Spruitenburg
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It has been two years since my surgery, removal of Pancreas, Gall Bladder, Spleen and 1/3 of my intestines. I lost over 35 kgs. I take enzymes, over the counter, the Creon enzymes I only take once a day with large meal. The other enzymes one to two times a day. I eat everything, the first year or so it would hurt to eat but it got better much better. I also take and a lot of vitamins liquid for easy absorption with enzymes. High doses of C help with pain and also are great to reduce illnesses. The energy will come back, it did for me. I run 10 K through hills. My diet at first was through a feeding tube. I hated it, and started at first eating bland food, yogurt, and drinking liquid protein. Some times actually many times I would take pain meds to manage the eating pain. Some folks would not eat anything that causes pain and stayed on bland diets. I decided not to to do that and if something hurt to eat, pain meds and more of the same food till it stopped. I was really surprised this worked for me. But I eat things like cabbage, hamburgers, hot links, any type of sausage and spicy food. I always had and still do take liquid vitamins, it has been very important. I also take Type One and Three Collagen as it makes the cells better able to get rid of toxins and absorb nutrients. Coral calcium works great as well as other stuff. My morning consist of shots of nutrients, juices and herbs.
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Dear Eileen I am A similar situation had the same operation and have two boys. I lost too much weight after depression I'm still losing it's about 20 KG did you lose weight after the operation ? And by exercise what do you mean do you walk or do you do you do real exercise thank you
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I'm so sorry that your body's physiology is affecting your personal relationships. I wish others would be more empathetic toward you. It's not like you want to be sick!
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5 years ago had pan tail removed gallbladder and spleen . Sucks!!! Keep on going! Last couple days my left rib area hurts when I bend down. Feels like a Charlie horse anybody know what this means? Trust n God
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Hey Eileen, my mum has had the same thing done to her and she isn't coping she is a single mother three young kids and a type one diabetic how do you get your self so healthy and fit my mum is an exercise adddict but got talk she can't do it anymore one thing that kept her going she can't eat or doing anything how are you so healthy??
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Hi Irfan,
My husband had his spleen and 2/3 rds of his gall bladder removed 3 years ago after a tumour in the pancreas had been diagnosed. He has fully recovered and now cycles long distances regularly, looks better than he has ever looked and has more energy than me! Work that one out!!! x
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I had my pancreas, gall bladder, spleen, 25% of stomach and 25% of intestines removed two years ago. My life is extremely difficult at best. No energy, vertigo, pain, constant nausea, chaotic blood sugar levels from 50 to 500. I pass out at times and shake uncontrollably at others. I don't know that I'll ever recover. We all have different experiences. I also had a horrible doctor. Joseph Lee of Johnson City, Tennessee.
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Hello my husband just had half his pancreas removed and his spleen ... it was about 4 weeks .. He is able to eat .. but feels dehydrated all the time ... and so tired .. I really cant find what hydrates him ..is there anybody that can help .. Like I said I have looked it up ...but really dont find much of what will help him .
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I have had this done. I lost my pancreas except a small part of the head, spleen and gallbladder in one surgery. My surgeon was AMAZING. I did spend 14 days in the hospital and am now considered a surgical type one diabetic. I rely on my Omnipod insulin pump and my CGM. initially it was difficult figuring out insulin, now it is just another thing in daly activities, my pump is water proof so I can swim boat hike bowl anything I want to do. I am several years post surgery and still going strong.
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Hi Cathy yes my husband takes violas enzyme and 2 with ,meals and they work great he has no pancreas and is now diabetic to
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50 to 500 bs never heard of anything past 32 really
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Hi, I had a whipple, they took half of pancreas,, part of small intestine and some large indestine, gall bladder, spleen, half of my stomach and one third of my colon. The reason I share this with you, you probly have the same issues of eating, what can you eat and what not to eat. Are you on some kind of diet plan? I to am type 1 can you help me
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