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cherilyn
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Joined: 24 Jan 2002
Posts: 229
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 Posted: 10/05/06 - 23:00 Post subject: trimethylaminuria |
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Hi, I suffer from trimethylaminuria since I was 15. I was never more depressed in my life. I have no social life, because everyone avoids me. My body produces a strong odor of rotting fish. I know there is no cure for trimethylaminuria, but I need to know if there is any way of reducing the smell.
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madella
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Joined: 29 Jan 2000
Posts: 309
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| Posted: 10/11/06 - 05:38 Post subject: |
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I know exactly how you feel. I suffer from trimethylaminuria too, and I had so many problems especialy in puberty. All the kids were evoiding me and laught at me. It was a traumatic experience. My mother had trimethylaminuria too, so as my grandmother. This is a disorder in which the body is unable to break down trimethylamine, which has a strong odor of rotting fish in sweat, urine, and breath. I found oot recently about some ways to control the smell. First, avoid food that contains choline and trimethylamine-oxide, the precursors of trimethylamine. Then, you can take low doses of antibiotics for bacteria in the gut, and finaly you can use soaps with a moderate pH, between 5.5 and 6.5.
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Michkah
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Joined: 12 Sep 2008
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| Posted: 09/12/08 - 20:32 Post subject: Trimethylaminuria |
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Hi,
My name is Mickah I was wondering are you lady's aware of the support group for trimethylaminuria were are you located? I'm in California. Their are alot of people suffering from trimethylaminuria I would like to meet you I'm a female . I would like to get a TMAU support group together .
P.S.
Take Care  |
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