urethral pain flare-ups, nausea, and generally blah!

in the unknown · Guest

42 year old woman with intense flare-ups for over a year in urethral bladder area with constant low level nausea. The symptoms I am concerned about began a year ago when I presented with a swollen pelvic lymph node, nausea, bloating, pelvic pain (differing from diagnosed endometriosis of twenty years) and low vibration sound in left ear. Sharp and dull pains around bladder and g-spot area... feel like I need orgasm, but then may suffer more afterwards. Often pain with urination. These symptoms have continued for over a year as extreme flare-up of symptoms, not always present... (but more so than not) sometimes exacerbated with sexual contact, not always... doesn't seem cycle related. Tested for UTI's and STD's by several practitioners with neg findings. Took antibiotics without success, nystatin and months of yeast free diet without success. Am taking lots of vitamins now... and had a laproscopy for endometriosis two months ago (with a neg finding for IC). My endo symptoms are better... the symptoms that began with the lymph node in my groin over a year ago remain. I need help. My life is at a standstill. I feel like I have an infection of some sort (also 6 mos. ago I had a cervical polyp removed). The only relief I have felt is with a chinese herbal formula I was given for "bladder infection" however afterwards I am self treating for yeast with boric acid suppositories... this is a continual cycle. I would appreciate any insight you may offer. Thank you.

Guest · Guest

Wow, your post really sounded just like me! I've had the same symptoms you're describing, since the end of December. I had a UTI in January but that's gone, however the burning, pressure, nausea, and feeling like needing an orgasm continue! I'm blown away by your description, especially about the orgasm symptom! I thought I was loosing my mind! The doctor is finally sending me to a urologist, but get this......my appointment isn't until May!!!! More suffering, not that it matters because they probably won't be able to diagnose it anyway! I'm totally disgusted at this point....and depression is now setting in. Anyone have any suggestions as to what this may be??

Guest · Guest

hi, thanks for writing...
I am still struggling with "flare-ups"--less of the urethral pain on urination... for now, but continuing pelvic/bladder pain, intermittant nausea, pain at hips, low back etc.

My latest treatment strategies: Seeing a pelvic floor Physical therapist, taking pumpkin seed oil (supposedly for possible interstitial cystitis), and just a couple weeks ago was tested and found an overgrowth of ecoli vaginally (after 8 months since my last vaginal culture)... this can cause UTI's... I am imagining I have had cycle of infections and have self treated using a chinese herbal formula... but never kicked it... I have been quite ill. I am also continuing to treat for candida... tested for lyme and now mold toxicity...

I am hopeful... but still experiencing some discomfort and fatigue (maybe due to living with an undiagnosed infection for months).

I hope your appt. in May is helpful and illuminating in some way. The other thing I have wondered about is "urethral syndrome" which can be a low grade infection somehow referring to the 'g-spot"... but I am clearly not a dr... just a woman wanting wellness. I wish this for you too.

May health and wellness bless us all!

Guest · Guest

Man, I have had the same symptoms with no luck either. I have been tested for UTI's (which I have had and they have gone away and come back), STD's (neg. results), and had different pelvic examinations. Nothing yet. I feel like I have some sort of infection as well. I have general milaise. I have a pain in my lower left abdomen too. It is intermittant and is in the area of what I believe would be my fallopian tube. Good luck to you.

Guest · Guest

good luck to you too.

Guest · Guest

Well,here I am again, no further than I was last time I posted. I was supposed to see a urologist in may but it was moved up to march since there were atypical cells found in my urine. Since then I've had a cystoscopy, bladder wash, CT scan which found gallbladder stones but nothing else, and a cystourethrogram to check for a urethral diverticulum which the urologist thought she felt upon examination! All tests were negative. The urologist wants me to use estrogen cream which I won't do being that my mother had breast cancer. So now I don't see her again till september. I'm in excrutiating pain most of the time with pelvic pressure all the time. I guess I'm stuck with a syndrome! Very depressed. My family doctor told me that the urologist reported that I have a uterine prolapse and a bladder prolapse...but the urologist never mentioned it to me! I cry everyday over this "thing" that took over my life. I was fine till I had a bladder infection in january. I've been in pain ever since.

Nats · Newbie Joined: 08 May 2007 Posts: 1

Hi, HELP PLEASE!!!!. My urologist diagnosed me with Urethral syndrome a while back. I have had numerous amount of tests, cystoscopy, mri scan, about 20 urine tests which are all clear!!! Nothing seems to be visable to the doctors at all, but expect from my symptoms that it is Urethral syndrome.... god this is so irritating and upsetting, I wish it would just go away!! They have today discharged me from hospital as they have said in there own words there is nothing more they can do for me, what am I too do now. This started about 1 and a half years ago when I started to have sexual intercourse.... I have been to the GUM clinic to double check, but it defintly isnt a sexual disease, doctors first thought it was a urine infection, but was negative. My sex life and everyday life is suffering with this.... is there anyone out there who knows what I am experiencing? Have any tips.... be much appreciated!! Any questions please ask away. Thanks, Natalie (20YRS OLD)

Guest · Guest

I hate this. I have had urethral pain for 7 years. No one has ever known what it was from. I have had 30 UTI infections in the last 7 years. I think I screwed my bladder up. When I was 15 I had a UTI... didn't know what it was. I let it go for so long that i was urinating blood. I wish this would stop. I take cranberry everyday and I also take uristat to releive the feeling of pressure. The outer part of the urethra burns sometimes. like the vaginal tissue is very sensetive.

I don't know what to tell you ladies. I am still looking for an answer and have yet to find one. I have just called it my bladder pain. "No I can't go swimming today I have bladder pain." " I need to go to sleep cuz my bladder hurts" It is depressing and scary. I can't take advil or anything because it will upset my bladder.

There has to be an answer. Someone has to know what is going on!!!

urethral pain flare-ups, nausea, and generally blah!

LIFEFORM SOCIAL COMMUNITY NETWORK