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Posted: 04/04/06 - 13:27 Post subject: turrets |
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i have turrets and would love some help i want to be a normal kid
[/b] |
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Posted: 04/08/06 - 16:50 Post subject: ophra..and symptoms |
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did any one see ophra??
any knowinglly or unknowinly grunts or movemnets is tourrets....
the kids on tat show no tey are doing it and usually comes form somethingthey think about...that triigers it,,any humming grunnting or jerck movmetnts is touutreets,,,i have 2 kids in family with it// |
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nickthaquick
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Joined: 17 Apr 2006
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Posted: 04/17/06 - 02:12 Post subject: i have TS |
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i have had TS since i was about 10. symptoms have been slowly getting worse, although at times they appear as if they are completly gone for a month or two, then they come back. i am now 20 and living at college. as far as tics i normally just blink, most of the time my left eye only, and wiggle my nose too. from the time i first started doing tics, i went from winking, blinking, clearing my throat, shaking my head slightly, opening my jaw, and a few others. it really makes me angry when in movies or tv a "Turrets joke" is used, and most of my friends laugh, thinking i do not have this. turrets is streotyped by the few extreme cases in which obscenetities are yelled out, most of the time occuring loudly in highly inappropriate places and times. although even i at times think this is funny, i dont think its right for people to think having 'turrets' means you are the wierdest freak out there on the planet.
most of the time i live a normal life with my beautiful girlfriend who fully understands what is happning with me, my friends (none of which have this problem) who accept me for the personality that i have and not for the facial expressions i may do, and my loving family who see my TS as part of me insted of something thats wrong with me.
i cant lie, i wish i never had this.... at parties or in class or in the halls i may see people talk about it, and sometimes show their friends what i do (the blinking), and i have to say its the most crushing feeling ever.
for those who are reading this who have TS, i would like to know any solutions they have come up with. i plan on seeing a doctor soon, but i have google'd around to find out that there is no miricle cure for this. i am fully aware that there is no way to stop it, so i am asking anyone with TS if there are tips on how to control it.
i have a feeling it has to do with controling levels of stress, which is something that is hard for a college student to deal with as i am in my sophomore year and final exams are approaching
i also think it has to do with diet and excersise
i also find it odd that when consulting a doctor or even talking about it, my tics seem to dissappear for the time being, as if they were scared to be shone to someone that may be able to help, as they are right now......
this may sound strange, but if any people with TS could give me alternative tics that i may do besides facial tics, which areat times the most obvious and disturbing of my daily life, i would be greatful.
thanks in advance to anyone who can provide with some good comments and feedback, and perhaps some advice on what i should do...... |
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Posted: 04/30/06 - 16:04 Post subject: turrets of course |
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my parents think that i have turrets syndrome because my eyes, arms, legs, and pretty much my whole body twiches. i also i smack my head and go doh(probably has nothing to do with it though), and i argue so much without control, i even argue about arguing!!( dad," stop argueing, me, " im not arguing!) sometimes repeat myself and i always shake my head all the time. Is this turrets?  |
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grannyannie
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Posted: 05/02/06 - 15:34 Post subject: turretts |
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I have a 6 year old grandson that was taking into care 2 years ago. He si not blood to me but is still mine as far as I am consurn. I was told by his mother that they said that he had terretts. they had put him on some kind of med for ADD and ADHD. He was find and in good health before the took him into care they also have his older bother on the same thing. It starts with a C, If I herad the name I would know it. the youngest child who is mine buy Blood in not on any of the meds they say he is fine. But
I was wondering if Turretts is something that one would inhairet. if thats what he does have. and what would it be brot on from if not. Could the meds be doing this to him or maybe the shock of being taken into care. at the age of 5 away from his brothers and parents. Because the CAS did seperate them. Please if you could help me understand. I woud like to here from someone out there.
A Grandmothers Love
Simcoe On.
i |
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Laylah
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Posted: 05/03/06 - 10:35 Post subject: Re: turretts |
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| grannyannie wrote: | I have a 6 year old grandson that was taking into care 2 years ago. He si not blood to me but is still mine as far as I am consurn. I was told by his mother that they said that he had terretts. they had put him on some kind of med for ADD and ADHD. He was find and in good health before the took him into care they also have his older bother on the same thing. It starts with a C, If I herad the name I would know it. the youngest child who is mine buy Blood in not on any of the meds they say he is fine. But
I was wondering if Turretts is something that one would inhairet. if thats what he does have. and what would it be brot on from if not. Could the meds be doing this to him or maybe the shock of being taken into care. at the age of 5 away from his brothers and parents. Because the CAS did seperate them. Please if you could help me understand. I woud like to here from someone out there.
A Grandmothers Love
Simcoe On.
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Tourette syndrome is a neurological disorder characterized by repeated involuntary movements and uncontrollable vocal sounds. These are called tics. Some patients, besides involuntary movements and uncontrollable vocal sounds express the disorder by inappropriate words and phrases.
Most of the time, the disorder is inherited. It is thought that there is an abnormal gene that’s affecting neurotransmitters, chemicals in the brain that have communicating function between nerve cells.
If just one of the parents has an abnormal gene, a child has 50% chances of inheriting it.
Even if a child inherits the gene, it doesn’t necessarily mean that he would develop TS.
TS can express itself in different ways. It could be a mild tic disorder but it could go as far as ADD with or without tics, it could express itself as obsessive compulsive disorder in which a person is obsessing constantly about one thing and doing things in order to stop it. For example, a person may fear that he/she would catch a disease and keeps washing their hands all over again in order to prevent it.
However, there are cases where there is no genetic link or at least it can’t be found. So, the cause of their problem is not known and it is called sporadic Tourette syndrome.
Now, regarding ADD and problems with your grandchildren, there is an explanation.
I havealready mentioned that some children have only tics while other may have additional problems like ADD, obsessive compulsive behavior, learning disabilities, inability to control their impulses, may suffer from sleeping disorders, etc
So, the medications your grandchildren are taking are to help them deal with their problems, mostly ADD since there are no medications to treat Tourette syndrome. |
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hugheskw
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Posted: 05/15/06 - 11:08 Post subject: Tourrettes?? |
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| after reading some of this post, I have to include my story to see if it's the same, my grandson, has been having what we thought were seizures for about 6 months now, meds have no effect at all. His episodes occur 7 to 8 times a day. He currently doesn't know any curse/swear words so his tics aren't accompanied by swearing but they include grunts and are normally accompanied by laughing/giggling to himself. Most of the time he can continue with the activity but is definetly affected by the episodes. He had infantile spasms as an infant which he eventually outgrew and it definetly hurt us alot when he started having these seizures/episodes/tics. from what we can tell they aren't painfull and we've come to accept them but just make sure he's not in a position to hurt himself or others when they occur |
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Ready_Lube
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Posted: 05/17/06 - 18:08 Post subject: |
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| What a terrible situation for you hugheskw, I feel for you and will send some prayers your way and all the others. I hope he outgrows this phase as well. |
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Posted: 06/06/06 - 10:52 Post subject: tourrets |
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| Hi, i am 24 years old and since the age of a about 12 i have had a facial tick ( nose twitching ) I saw my doctor about this approx 5 years ago and he dismissed it as nerves. but recently i have started having involentry movement ( jerking my head and sholders ) if i try to stop it gets worse and its making my life hell. again i saw my doctor who this time put it down to anxiety. i have tried all sorts of herbal anxiety pills but nothing works. Do u think i have tourrets[/b] |
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Posted: 06/06/06 - 10:59 Post subject: tourrets |
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| Hi nickthaquick. i have found that when my ticks get bad i get a retractable pen and just click away at it. its a good form of relief for me and its not something that causes much attention which is something that makes my ticks worse ( when people r looking at me ) hope this helps 4 u to x |
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