I am so happy I’m not crazy!!!! I am sorry this is happening to so many of you guys.
I’ve had more than one cystoscope. My problem started when mesh was used to repair a problem with urinary incontinence. Since then, I have to keep my bladder full, the pineapple juice like urine, the spasms, the intolerance to alcohol, tomato sauce, salt and raven forbid I let my bladder empty out or hold my urine.
This is totally crippling. I’ve lost my quality of life, period!!!
The antibiotics work as long as I’m taking them and within two days, I’m back to square one.
Out of desperation, I found this combo makes things more bearable.
I wake up about 3 AM and drink water and void.
As soon as I wake up, drink water, thennnn have coffee or tea or whatever.
Drink at least 1,000 MG of cranberry pills with D Mannose which is a sugar to coat the bladder and keep bacteria in check.
Drink garlic pills mid day. Again, several of them.
At night, take Lactoferrin by LifeExrension.
If you plan to have sex. Please make your partner brush their teeth, and take a shower. It sucks but it’s what works for me.
Once you’re done, make sure you get up and void and drink water with the cranberry pills.
I’ve given this regimen a lot of thought. It started in 2008 after I was injured by a suburethral sling for urinary incontinence. They ruined my life.
The stress from this is so bad, I now have Fibromyalgia and Interstitial Cystitis.
Im not a doctor. I’m just sharing my experience.
Good luck ladies and I pray you get better.
If you have symptoms of a uti, and cultures keep coming back negative get checked for ureaplasma and mycoplasma they are bacteria that don’t show up in standard urine cultures as the bacteria are so small. Only certain antibiotics like azithromycin and doxycycline will kill it. Some doctors dont even know about this bacteria, find a doctor who has heard of it and ask to be tested. Unfortunately I had to go to many doctors before I was taken seriously..
I know you posted this over a year ago, I was just wondering if your wife got better after the treatment? I am having the exact same issue and have been going through this for 10 months. I had a bladder infection Ureaplasma back in February and had 7 day course of antibiotics but every time I come off them the symptoms return! Seen two urologists and had two cystoscopies and they say everything looks fine and urine tests come back negative but I still have severe burning at some point everyday and frequent urination. What antibiotics did your wife get out on and how did this third urologist diagnose it? I don’t have any cysts so I’m scared they will dismiss this as a possibility.