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can I bother you with some random questions about vasculitis, please? I know that there are at least ten different forms of vasculitis, and that some are accute while others are chronic. But I am hoping someone can tell me what the life expectancy is for people with the more rare forms of vasculitis, like kawasaki disease, or Churg-Strauss syndrome? And what is the most deadly form of vasculitis?

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My husband has had Churg Strauss for 12 years now. He is 71. We have met people who are afflicted with this disease who have survived 17 to 20 years. I believe with the knowledge that they have of this disease (as well as other vasculitis diseases) that your chances of a long survival with proper care are very good.
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hi i havewagners granulamotasis how rare is that
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Hi-Does he take autoimmune drugs? Do they make him sick?
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I was diagnosed with CSS in 1992 at the age of 39 years.. Although I had congestive heart failure in 2002, it resolved itself within a year. I did get peripheral neuropathy in 2002 as well. I've had many, many other symptoms as well, I have been able to work and enjoy life with some restrictions. To answer your question, I have had CSS for 22 years. USA, female
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I was diagnosed with WG back in 2005 or 2006. My Rheumatologist at the time told me there were fewer than 500 new cases diagnosed annually n the US. However, there are many that may have WG but simply are not diagnosed...
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32 years living with Churg Strauss
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I've had CSS 18 years.
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Hello. I have CNS Vasculitis. My craniotomy was 4 months ago. I’m on prednisone and receive chemo. I too am curious if anyone knows what the life expectancy has been documented in the past.
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