I have been diagnosed with HMG Coa reductase myopathy; in other words, taking statins gave me myositis. I have been on folic acid, methotrexate & prednisone, I cannot find a doctor in my area who has treated this specific disease, & my rheumotologist wants me to go on Rituximab, a chimeric monoclonal developed in New Zealand pigs, very expensive & has LOTS of side effects. I do not want this med, nor the other ones he offers: Imuran, Cellcept or IVIG. I am on disability from this, & cannot afford some of these treatments. I feel like I;m alone in this, as this is a very rare disease, & I don't want to take meds which will make me more sick - I already got sick from methotrexate, & now have to give it to myself intravenously. I HATE NEEDLES, I have tremendous trust issues, as it was American Pharma who got me sick, & now I'm supposed to trust that same entity that got me sick. I just want to fade away at this point. Don't want to put my family through the pain & distress & financial hardship that is inevitable. Hopeless.
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