Are there other people who have been given rituxan as a treatment for polymyositis? If you have, would you mind answering a few questions please? How long have you been taking it and how does it work for you? Do you have any notable side effects? What dose are you taking? Thanks for your help!
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I have been receiving it for 6 years now as a treatment for polymyositis. The major down side for me is that vaccines won't work, as you need B cells for them to succeed. But my CK is down to normal range almost immediately, and remains there until the end of the 6 month cycle. I have not noticed any negative side effects. The treatment has helped me to pretty much hold on to the muscle strength I had, but I have not been able to regain any of the strength i had before, even with vigorous exercise. I hope this helps you, good luck with your treatment!
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