polymyositis mortality rate

It depends on the person, and medical treatment, how soon you become diagnoised . and treated, The fact is the underlineing of its course, The immune system is tricky. plus other factors, from HIV to diabetes. from tumors to cancer, lung dieases. fybromyalga. lets not forget pain and depression. Weakness from head to toe. and the side effect of the drugs you have to take to stay alive. There are very few treatments. So they say, I personally wish they would of just tryed blood transfusions first. Two and half years, We all thought i was dyeing, I am still able to walk, not far, able to get through the days with alot of meds, There is no balance in life anymore for me. The way im deteriorating on the inside, I hope to remain mobile. But this diease is malisous and attacks ever muscel lungs heart, legs hands. I couldnt walk or raise my hands to feed my self. Paralized...Hope that answers ur question

I have have Polymyositis, followed by Toxic Myopathies for 15 years. Many drugs increase the inflammation, sometimes it is just the Brand of Drug, like Letrozole brand Apotek gave me severe attack w/signs of cancer recurrence, I was taking the Teva Brand for 3 years with no problems. Daily childrens aspirin, and keeping sugar intake as low as possible keeps inflammation levels down and I am better able to walk and do light housework. I don't add sugar to anything, it hasn't been in the home since 1976, I check ingredients on food to make sure there is less than 6 grams of sugar per serving. It is very difficult as so much sugar is added to almost everything. I but boxes of plain raisins to add to my plain bran flakes for breakfast, All brands now sugar coat their raisins, STUPID! I have complained to them for changing, but they don't care. "Stupid Is As Stupid Does"! I developed Polymyositis when I was 38 I am now 65, I have ups and downs mostly caused by drugs. I have learned to check the brands to make sure my pharmacy hasn't changed on me, they did just this January, they didn't tell me and I didn't notice, just 4 days after stopping the Apotek Brand most of my pain and inflammation was at low levels. Often I have found Doctors don't know how drugs can affect and damage certain individuals they aren't educated enough. Hope this information helps others suffering.