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Sorry if this sounds a little confused and rambly, but I have just been diagnosed with polymyositis and I am feeling somewhat overwhelmed. I am scared, and not only of polymyositis but also because I have heard that polymyositis is related to cancer in some way. I know that I have nearly no hope of remission, but if the medication works well, I really hope I won’t be too severely affected by polymyositis. Can you tell me more?

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Links between cancer and polymyositis are commonly suggested. However, almost no studies have been done to research which cancers accur in combination with polymyositis, and how often. To be honest, I believe that the best thing you can do is to live a healthy life and to focus on treatment of your polymyositis. Worrying about cancer is not going to help you at all. I am sorry you feel scared about your prognosis, but as you mention, most people with polymyositis can improve their muscle strength using drugs, and live relatively normal lives.
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That you. Can I be so free as to ask how got that information? And if any studies have been done can you tell me how I can get my hands on those? Information is still the best weapon I have – apart from medication, of course! – and I would like to arm myself with all the knowledge I can get. In the meantime, I will try and stop worrying too much.
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I was diagnosed with polymyositis about 5 years ago. I have never heard of it being linked to cancer. I went months barely able to walk. Drs put me on methatrexate and steroids. It took about 6 months before I got strong enough to wash my own hair. I was good for almost 2 years and then I started to slow down. Couldn't walk up stairs, couldn't do much. I ended up in a wheel chair for over a year. Then it took over a year to get back on my feet. Its a slow mean desease. I would not wish it on anybody.. If you have any questions, feel free to write me.  ***this post is edited by moderator *** *** private e-mails not allowed*** Please read our Terms of Use

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I was diagnosed with PM when I was only 5 years old. I took steroids for about 5-6 years ( started on high dose and tapered down). in my teen and college age years was said to be in remission. Now I've had "relapses" and I am currently facing a possible cancer diagnosis. From what I've read, most people who get diagnosed are adults, so they don't live much longer than 20-30 years after diagnosis. I am now in my late 30's. I'm sorry to sound like such a "negative nelly", but I'm wondering if

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