I went to Duke for a 2nd opinion on my Chiari...17.8 mm herniation now post surgery oover a year ago...was 11 mm pre surgery. Also a portion of my brain called the vermis is descending...They wanted to do an LP...which if not done by VERY trained professionals, can make things much worse...So, I delcined doing that. I am going to see a Chiari specialist (finally!) in May. I am surprised that your Chairi wasn't mentioned to you...Ever find out why?
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My fisrt couple of symptoms before we discovered I had Chiari was of course, the headaches AND sever left sided facial nerve pain. Now over a year since my surgery, My MRI shows a drop from 11 mm to 17.mm...I have SEVERE right sided face and jaw pain! I think it definitely can be related to the Chiari...at laest for me, it seems to be
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SO ABBY, YOU GOT YOUR SURGERY DONE CORRECT? WELL LAST NITE I TOLD A FRIEND OF MINE THAT ALL MY HEADACHES WILL NOT GO AWAY, BUT IS SUPPOSE TO CUT THEM DOWN. HAVE YOU BY ANY CHANCE RECEIVED SOC/SEC DISABILITY ON THIS? I AM IN THE PROCESS OF GOING THRU IT NOW.
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Hi my mane is Patricia and I have a chiari malformation 1. I had my operation on December 22, 2011 and was released from the hospital the day after Christmas. I had a lot of complication after my surgery, not to scare any one but after the surgery and I was home I started leaking brain fluid went to the ER and they added an extra 9 stitches to my incision and sent me home. the very next day I was sill leaking brain fluid and returned to the ER, other than the brain fluid leak I had a high fever and the chills, they did a spinal tap and it came back that I had meningitis. they addmitted me to the hospital and started me on a high dose of multiple antibiotics, two of which I became alergic to and had to be readmitted. over all what was saposed to be a very simple sergury turned into a living hell. I still have all the same pain and headaches from before the surgery and my Dr. is wanting to put in a shunt to take the pressure off of my spine. I had a very bad expirence and i hope any one else having the surgery has a better expirence than what i had. Good luck.
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HAD MY SURGERY MARCH 2011, AND STILL HAVE HEADACHES, AND MIGRANES. I DON;T KNOW ABOUT YOU ALL, BUT IF I HAD TO DO IT OVER AGAIN, I WOULDN'T. I AM ON MEDS AND ON SSDI. I WANT TO SAY THAT WHOEVER GETS THIS DONE, PLEASE MAKE SURE THAT YOU GET A SPECIALIST TO DO THIS. I HAD ONE OF THE BEST, AND I BELIEVE BECAUSE I WORKED WHILE NOT KNOWING WHAT I HAD MADE MY SPINE WORSE THAN WHAT IT WAS.
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Did you ever get a response to this? How is your daughter doing? Was she able to continue with soccer? My 18 year old daughter, also plays soccer for college, was just diagnosed. -
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Hi. Was diagnosed with 9mm Chiari and am considering Dr. Oro. Did you like him and the center?
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I am a 7 months post op Chiari malformation survey patient. I now have a 1 inch deep hole at the base of my scull. What is this caused from and why did it happen?
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