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My husband had a few great months on the medication and then he had some exerbations, he has been on the tysabri for over a year and has no new lesions as of now. He will receive another MRI Next month. I agree one should listen to their doctor, but it is your life.... read all about it and weigh the risk. My husband's doctor advised him to never go off Tysabri... at this point Biogen does not study patients after the two year mark ( this is my understanding)
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I am trying to help other people who are currently going through, or are about to start a treatment with any form of Interferon, including Intron A, Roferon A, Pegasys, Betaseron, and others.
I set out to collect other patients' personal experiences with the drug, particularly how they coped with the side effects. I started interviewing people online but they were somewhat reluctant to share. In the end I interviewed four patients, and added my own experience with Interferon treatment. I asked them some questions based on what I would have liked to know if I was looking to learn how it feels to be on Interferon.
Besides the interviews, I also added some basic info about Interferons and what diseases they are used for. I hope this is of some help to you.
You can find the book here: https://www.steadyhealth.com/interferon-side-effects
It's completely free but, "Please, spread the word!". If it helps you, it might be of great help to someone else too.
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