My unborn baby was just diagnosed with Acrocephalosyndactyly, which means that my husband and I have some tough decisions to make. One of them, and the first one, is whether to carry on with the pregnancy at all. We still are not sure what kind of lives people with Acrocephalosyndactyly can have at all. I know that any children that are born alive need many surgeries for the malformations of the skull and face they have. Please, can you detail some of the more common surgeries for me? That would be of great help.
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