Couldn't find what you looking for?

TRY OUR SEARCH!

Hi everyone,

My friend's daughter was recently diagnosed with tetralogy of fallot, or TOF. My friend was pretty much mad at the doctors because this is a congenital condition (so she told me) and they were supposed to diagnose her child with this as soon as she got born. I don't know much about this but seeing my friend as worried as she is, I'm guessing that it can get pretty much dangerous.

She is waiting to see her doctor in order to talk about her daughter's treatment options. Does any of you here know what are the treatment options for TOF?

Loading...

Hi there Bee,

Tetralogy of Fallot, or TOF, is a rare condition caused by a combination of four heart defects that are present at birth.

These defects, which affect the structure of the heart, cause oxygen-poor blood to flow out of the heart and to the rest of the body. Infants and children with tetralogy of Fallot usually have blue-tinged skin because their blood doesn't carry enough oxygen.

Tetralogy of Fallot is often diagnosed during infancy or soon after. However, tetralogy of Fallot might not be detected until later in life, depending on the severity of the defects and symptoms, which is the case with your friend's daughter.
Reply

Loading...

Hey Bee,

If I remember well, because a friend of mine had a daughter with this condition as well, surgery is the only effective treatment for tetralogy of Fallot. Surgical options include intracardiac repair or a temporary procedure that uses a shunt. However, most babies and older children have intracardiac repair.

Your friend's child's doctors will determine the most appropriate surgery and the timing of the surgery based on her child's condition. It is probably, not probably, it is definitely better to let the doctors decide what is going to be done. After all, they are the doctors and they have insight in your daughters medical records.

Reply

Loading...

Stradivarius mentioned two different surgery options there.

Intracardiac repair - This open-heart surgery is usually done during the first year after birth. The surgeon places a patch over the ventricular septal defect to close the hole between the lower chambers of the heart (ventricles).

He or she also repairs or replaces the narrowed pulmonary valve and widens the pulmonary arteries to increase blood flow to the lungs. After intracardiac repair, the oxygen level in the blood increases and your child's symptoms will lessen.

Temporary surgery - Occasionally babies need to undergo a temporary surgery before having intracardiac repair.

If your baby was born prematurely or has pulmonary arteries that are underdeveloped (hypoplastic), the surgeon will create a bypass (shunt) between a large artery that branches off from the aorta and the pulmonary artery.

This bypass increases blood flow to the lungs. When your child is ready for intracardiac repair, the surgeon removes the shunt during the procedure for intracardiac repair.

Reply

Loading...

Hi there.

I am pretty sure that one of the ways to treat Fallot in kids is so called fallot therapy. The main goal of it is to reduce the ventilator drive and this also increases the systemic venous to return and to increase peripheral vascular resistance. But that is one of the ways.

The other way, that is more common than any other therapy is surgery. Surgical options include intracardiac repair or even a temporary procedure that uses a shunt. However, most babies and older children have intracardiac repair. Your child's doctors will determine the most appropriate surgery for the kid.

Reply

Loading...

Good day. Tetralogy of Fallot must be repaired with open-heart surgery, it doesn’t matter in which time, is it either soon after birth or later in infancy. The goal of this  surgery is to repair the four defects of tetralogy of Fallot so the heart can work as normally as possible. Repairing the defects can greatly improve a child's health and quality of life. In this case the pediatric cardiologist and cardiac surgeon will decide the best time to do the surgery. Their decision will be based on your baby's health and weight, how severe the defects are, and how severe your baby's symptoms are.

Reply

Loading...

 

Hi there. Look, once tetralogy of Fallot is diagnosed in the kid, the immediate management focuses on determining whether the child's oxygen levels are in a safe range. In the case oxygen levels are critically low soon after birth, a prostaglandin infusion is usually initiated to keep the ductus arteriosus open which will provide additional pulmonary blood flow and increase the child's oxygen level. These infants will usually require the immediate surgical intervention in the neonatal period. Infants with normal oxygen levels or only mild cyanosis are usually able to go home in the first week of life. 

Reply

Loading...