HI im looking for people with the same condition tolosa hunt syndrome???? I wish they would do more research into this condition its ruining my entire life :(
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Hello! It's been a while since u wrote this but I just got diagnosed with Tolosa Hunt and started my cortisontreatment a few days ago. One in a million, it's unbeleivable! How are u feeling now? I was informed that Im going to get well and that feels amazing, I've had it för 3 months now and yes, it's devastating and hard and no one can understand the pain I've had. Please tell me more if i see this.
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