Hi,I am a 36yr old wife and mother of 3 beautiful teenage girls...And I was just dx'd with a 17mm Pineal Cyst as well as a very small pituitary tumor,which we were expecting.However,we were not expecting the cyst.I messed up though.I picked up the report and image CD today and don't have the next appt with my dr til Monday.But since I had some medical background I was able to interpret my results on the report.Now I have to worry about what my dr is going to tell me about this until then.
I am new to this site but have been reading some of the posts and it is so overwhelming that so many people have these same symptoms as I do and have the same problem getting the doctors to realize that you know your body better than anyone else and you know when something is not right.I have been trying to get something done about these horrific headaches and body pains for years and they keep filling me up with pain meds to mask the problem just they can move on to the next patient.I have so many questions I would like to ask and so many things I would like to say to others...I guess you can say I'm just in shock and so very overwhelmed.The first thing I would like to ask is if anyone else experiences this tingling sensation in the back of their neck...not pain...I describe it as feeling like a calming waterfall.It's such a strange feeling to describe,but it is really the only pleasant feeling from this.I have pain only to describe as lightning bolts shooting through my head and when that happens,I can't see anything but black and silver spots.My joints hurt,my legs hurt,I have turned into one of those people who wants to just stay inside isolated from everyone and I have these 3 beautiful wonderful girls that are gonna be grown before I know it and I am gonna be the little old lady hoarded up in her room wondering where the years went.My husband works alot of hours just so that I don't have to work because everytime I get a job,my health just prevents me from holding down a job and family.So therefore,I am a homemaker and this has really made me feel like a home-breaker because my family has watched me just go so low that I have all but given up.It's not fair to my husband to work all day and half the night to come home to total chaos and meals just thrown together because I was in bed half the day with a headache.I have always made sure my family had a hot meal and they knew how much it meant to me to do that for them.We were such a busy family on the weekends,going and doing whatever we felt on a whim...and now...they usually go to my moms for the whole weekend and my husband is usually working so i just stay in bed.I desperately need help from any and everybody that has any advice for me.Maybe now that I know what the problem is,I'm ready to fix it and get my life back.Am I the only one that feels like their life is just wasting away waiting on a doctor to realize that I am not psycho.The headaches are the worst,then the fatigue,sweating,leg cramps,hands legs/feet swelling,memory loss.It took me 45sec to remember how old I was at the beginning of this post.And this tingling sensation....what is that????And,are these cysts heredity?From what I have read,the surgery is pretty complicated.Is it very painful?How big does the cyst have to get before they will remove it and is it painful?Dangerous???
I have written so much to ask just a few questions,but I am so excited to be able to interact with others who has the same problems that I do.We are all here for the same reason...answers,advice,and most of all support to others.I know it will help me through my situation.
Any advice on how to get through this and maybe how I can explain to my children why mama is always here for them,and how to actually be there more,would be soooo appreciated!!Thanks in advance!!
I am new to this site but have been reading some of the posts and it is so overwhelming that so many people have these same symptoms as I do and have the same problem getting the doctors to realize that you know your body better than anyone else and you know when something is not right.I have been trying to get something done about these horrific headaches and body pains for years and they keep filling me up with pain meds to mask the problem just they can move on to the next patient.I have so many questions I would like to ask and so many things I would like to say to others...I guess you can say I'm just in shock and so very overwhelmed.The first thing I would like to ask is if anyone else experiences this tingling sensation in the back of their neck...not pain...I describe it as feeling like a calming waterfall.It's such a strange feeling to describe,but it is really the only pleasant feeling from this.I have pain only to describe as lightning bolts shooting through my head and when that happens,I can't see anything but black and silver spots.My joints hurt,my legs hurt,I have turned into one of those people who wants to just stay inside isolated from everyone and I have these 3 beautiful wonderful girls that are gonna be grown before I know it and I am gonna be the little old lady hoarded up in her room wondering where the years went.My husband works alot of hours just so that I don't have to work because everytime I get a job,my health just prevents me from holding down a job and family.So therefore,I am a homemaker and this has really made me feel like a home-breaker because my family has watched me just go so low that I have all but given up.It's not fair to my husband to work all day and half the night to come home to total chaos and meals just thrown together because I was in bed half the day with a headache.I have always made sure my family had a hot meal and they knew how much it meant to me to do that for them.We were such a busy family on the weekends,going and doing whatever we felt on a whim...and now...they usually go to my moms for the whole weekend and my husband is usually working so i just stay in bed.I desperately need help from any and everybody that has any advice for me.Maybe now that I know what the problem is,I'm ready to fix it and get my life back.Am I the only one that feels like their life is just wasting away waiting on a doctor to realize that I am not psycho.The headaches are the worst,then the fatigue,sweating,leg cramps,hands legs/feet swelling,memory loss.It took me 45sec to remember how old I was at the beginning of this post.And this tingling sensation....what is that????And,are these cysts heredity?From what I have read,the surgery is pretty complicated.Is it very painful?How big does the cyst have to get before they will remove it and is it painful?Dangerous???
I have written so much to ask just a few questions,but I am so excited to be able to interact with others who has the same problems that I do.We are all here for the same reason...answers,advice,and most of all support to others.I know it will help me through my situation.
Any advice on how to get through this and maybe how I can explain to my children why mama is always here for them,and how to actually be there more,would be soooo appreciated!!Thanks in advance!!
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wish I could help, just diagnosed my self, have had dizziness for years. I do have the tingling sensation on my left side of my head not painful..odd for sure.. good luck.
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