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I was just diagnosed with Mixed Connective Tissue Disease today. I'm terrified. I'm trying to put on a brave and strong face for my family of 7 ( we have 5 boys). I have so many worries and questions. I am in shock. Thank you all for the posts. I needed to read others stories to get some answers.


I am in limbo.  I have seen my blood results that are positive for Mixed Connective Tissue Disease but am awaiting to see the Rheumatologist as my family doctor did not want to say anything or give me answers.  I too am scared. 

39 years old, daughter is 4 years old as well as husband.  Problem is that we live in a province (Canada) with no family support around, they all live elsewhere. 

What has your doctor recommended for yourself? 

Good luck to you!