I am in the process of gathering information about Alpers syndrome and if there are any people here who have children with Alpers syndrome. Would you please share the medical care your child is receiving here, and the effectiveness of that treatment? I am asking for my thesis, if that means anything to you. Thank you in advance.
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I HAVE AGIRL WIYH ALPHRS SYDORME THAT EFFECT HER IN LIVER AND BRAIN
AND SHE IS FEEDING THROW ANGE TUBE TALK AND SET WITH OU SUPPORT.
AND THIS IS MY E-MAIL ADDRESS:_[removed]_
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